Monday, November 15, 2010

Oh, My Babies

This week I'm busy getting ready for a trip.  AJ and I are going to Madison this weekend, so he can participate in a language study at the Waisman Center.  Just AJ and I.  Zack is not talking enough for the study yet.  We hope to bring him next spring.

I've had a lot of misgivings about separating the boys for 4 days and 3 nights.  They don't share a bedroom, they are separated all day for therapy, but they are very, very close in spite of all that.



I know, in my head, that it'll be a good experience for all of us though.  Zack will be fine at home with daddy and Aliza, and grandpas and grandma will be coming over to help out.  AJ will be fine because he'll be with momma.  And I'd be lying if I didn't say a part of me is looking forward to a couple of days away with just one child.

But then this morning, I see the two of them doing this ....



and my heart hurts....how am I going to pull them apart?  For such a long time?  They have never been apart for more than a few hours.  Certainly never overnight!  Is Zack going to wander the house, looking for AJ?  Is he going to scratch his face in frustration and anxiety (which he did quite a bit this weekend, we think perhaps due to the fact that his favorite Wiggles DVD snapped in half), is he going to bite himself?  Is AJ going to give me that teary-eyed look he is so good at and say "Sack?  Sack?"

We will have to Skype each other every day, at least once, so that the boys can see each other.  I hope that is a good thing, and not just torturous for them.  I hope they are comforted by seeing each other.

I know what Temple Grandin would say.  She'd say "Do it. It'll be good for them.  They'll be fine.  Do it."  in her gruff way.  I hope she would be right.

4 comments:

Cortney Lyon said...

I wish you safe travels, a strong heart,and a good internet connection for Skype while your boys are apart. I'm sure it will be hard for them and for you, but hopefully it will be worth in to participate in the study.

Joey @ Big Teeth and Clouds said...

Hopefully on this one the anxiety of anticipating the separation will be worse than the actual event. I hope that is the case!

Chris P-M said...

Hey there! I'm another WI mom (saw your comment on Jen's blog). We live in Sussex, West of Milwaukee. We went to Children's for our son's genetic testing (incl Fragile X), and did that gamut...all results were negative. We're considering having our son's next neuropsych testing at the Waisman Ctr sometime after May. I'd love to hear your thoughts on the Waisman Ctr! I understand that they have a good autism research program, in addition to international adoption expertise.

BTW, your kids are adorable!

Rachael said...

aw... so sweet

Labels

#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs