I got the IQ test results this week. I spent quite a bit of energy thinking about whether or not I wanted to post the numbers. The actual IQ point numbers. And I wanted to, for several reasons; I don't want to hold back anything that might be relevant, informative, or helpful to another mom of a little Fragile X kid. I didn't want to just do this blog thing halfway -- I wanted to discuss the good, the bad, and the ugly. I strived to be truthful.
Yet I was uncomfortable with it, for some unknown reason.
So I have decided not to publish the actual numbers. I don't want a therapist or teacher who reads this to, even subconsciously, use the number to assign expectations, and lack of expectations, on the boys. I don't want it to define them.
However, while I won't divulge the number (and my boys did get identical IQ scores!), I will say that in the description of what the numbers mean, the boys' number fell within the range of "moderate developmental delay". Not "profound" or "severe". This I found encouraging. "Moderate", to me, says somewhat minor. Not "extreme", but just "moderate." I can live with this. I can work with this. I can attach great expectations to this.
I can also be assured that this IQ result is an estimate, based on how few of the questions the boys actually gave an answer to. I was there, I know what they can do and what they can't, and I know that just because they had trouble answering some questions doesn't mean they didn't know the answer; it may just mean they weren't capable of focusing. They couldn't settle down enough to take a test. It would be like me drinking a pot of coffee and then trying to sit down to write a blog post. Not that I have ever done that before.
I am further convinced it's an estimate since they got exactly the same score, and I witnessed this test -- AJ was a lot more cooperative than Zack was. The tester barely got a glance and a snort out of Zack. And yet Zack scored the same as his brother. Clearly an assumption was made that Zack would have responded the same. I don't have a problem with this assumption, it's probably true. And it's one more reason not to attach a great deal of importance and attention on the final "score."
So that's it. The great IQ test experience is over. And not nearly as traumatic as I imagined.
6 days ago
That's okay...we don't need the numbers! :-) I've forgotten what my boys' "numbers" are...it's just a number...
I guess the labels that might mean a little more are that Kyle is considered to be moderately retarded and Matt is considered to be mildly retarded. But of course, even those labels aren't the whole picture...not even close. :-)
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