I got the IQ test results this week. I spent quite a bit of energy thinking about whether or not I wanted to post the numbers. The actual IQ point numbers. And I wanted to, for several reasons; I don't want to hold back anything that might be relevant, informative, or helpful to another mom of a little Fragile X kid. I didn't want to just do this blog thing halfway -- I wanted to discuss the good, the bad, and the ugly. I strived to be truthful.
Yet I was uncomfortable with it, for some unknown reason.
So I have decided not to publish the actual numbers. I don't want a therapist or teacher who reads this to, even subconsciously, use the number to assign expectations, and lack of expectations, on the boys. I don't want it to define them.
However, while I won't divulge the number (and my boys did get identical IQ scores!), I will say that in the description of what the numbers mean, the boys' number fell within the range of "moderate developmental delay". Not "profound" or "severe". This I found encouraging. "Moderate", to me, says somewhat minor. Not "extreme", but just "moderate." I can live with this. I can work with this. I can attach great expectations to this.
I can also be assured that this IQ result is an estimate, based on how few of the questions the boys actually gave an answer to. I was there, I know what they can do and what they can't, and I know that just because they had trouble answering some questions doesn't mean they didn't know the answer; it may just mean they weren't capable of focusing. They couldn't settle down enough to take a test. It would be like me drinking a pot of coffee and then trying to sit down to write a blog post. Not that I have ever done that before.
I am further convinced it's an estimate since they got exactly the same score, and I witnessed this test -- AJ was a lot more cooperative than Zack was. The tester barely got a glance and a snort out of Zack. And yet Zack scored the same as his brother. Clearly an assumption was made that Zack would have responded the same. I don't have a problem with this assumption, it's probably true. And it's one more reason not to attach a great deal of importance and attention on the final "score."
So that's it. The great IQ test experience is over. And not nearly as traumatic as I imagined.
Connecting, 30 years later.
2 days ago