Saturday, May 01, 2010

IQ Test Results; How Much to Share?

I got the IQ test results this week.  I spent quite a bit of energy thinking about whether or not I wanted to post the numbers.  The actual IQ point numbers.  And I wanted to, for several reasons; I don't want to hold back anything that might be relevant, informative, or helpful to another mom of a little Fragile X kid.  I didn't want to just do this blog thing halfway -- I wanted to discuss the good, the bad, and the ugly. I strived to be truthful.

Yet I was uncomfortable with it, for some unknown reason.

So I have decided not to publish the actual numbers.  I don't want a therapist or teacher who reads this to, even subconsciously, use the number to assign expectations, and lack of expectations, on the boys.  I don't want it to define them.

However, while I won't divulge the number (and my boys did get identical IQ scores!), I will say that in the description of what the numbers mean, the boys' number fell within the range of "moderate developmental delay".  Not "profound" or "severe".  This I found encouraging.  "Moderate", to me, says somewhat minor.  Not "extreme", but just "moderate."  I can live with this.  I can work with this.  I can attach great expectations to this.

I can also be assured that this IQ result is an estimate, based on how few of the questions the boys actually gave an answer to.  I was there, I know what they can do and what they can't, and I know that just because they had trouble answering some questions doesn't mean they didn't know the answer; it may just mean they weren't capable of focusing.  They couldn't settle down enough to take a test.  It would be like me drinking a pot of coffee and then trying to sit down to write a blog post.  Not that I have ever done that before.

I am further convinced it's an estimate since they got exactly the same score, and I witnessed this test -- AJ was a lot more cooperative than Zack was.  The tester barely got a glance and a snort out of Zack.  And yet Zack scored the same as his brother.  Clearly an assumption was made that Zack would have responded the same.  I don't have a problem with this assumption, it's probably true.  And it's one more reason not to attach a great deal of importance and attention on the final "score."

So that's it.  The great IQ test experience is over.  And not nearly as traumatic as I imagined.

1 comment:

Jen said...

That's okay...we don't need the numbers! :-) I've forgotten what my boys' "numbers"'s just a number...
I guess the labels that might mean a little more are that Kyle is considered to be moderately retarded and Matt is considered to be mildly retarded. But of course, even those labels aren't the whole picture...not even close. :-)


#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs