Monday, November 22, 2010

"Good job, buddy!"

This is what AJ heard repeatedly the past couple of days as he participated in the Project on Early Word Learning in FXS and autism at the Waisman Center.  All weekend, while at the Waisman, at the hotel, in the pool, at McDonald's, he repeated told himself, me, and anyone else who might have been paying attention, "good job buddy!"
And he DID do a good job!

Really he did.  The researcher who interviewed me said they got a lot of great data from him.  We got done early every day, as he was more cooperative than a lot of kids, I guess.  I thought he might be, because a lot of the things they asked him to do are very similar to the activities he performs in his ABA therapy every day.

Guess what?  He cooperated for the hearing test.  Apparently the way it works is, they put up a picture of a rabbit on one side of the room and a dog on the other side.  AJ sat in the middle. Then there was a squeeking sound coming from the side where the rabbit was, and he looked toward the rabbit.  (I did wonder to myself, do rabbits squeek?  Maybe people who know rabbits know these things. Anyway, AJ knew that they squeek.  Or maybe he just turned in the direction of the sound and thought the same thing I did -- do rabbits squeek?)

When we weren't working at the Waisman Center, we mostly just stayed at the hotel.  AJ needed to unwind, and he does that best in front of a computer where he can go to either or You Tube and watch his videos.

We did go swimming a couple of times, but as I mentioned in this post, he wasn't too keen on swimming with mom.  I tried to be fun, but it just wasn't the same as having his siblings and/or other kids around.  And both times we went to the pool, we were the only ones there.

One afternoon I decided we needed a little fresh air, so I dragged him out to see the lake, and to the University of Wisconsin/Madison campus.   He hated every second of that.  We shopped for t-shirts for the family at the U of W bookstore, and he bit my hand the whole time.  After that we ran through a grocery store quick so I could get a few supplies for the hotel room and for the trip home, and he chewed on my hand throughout that store too, so that by the time we left my knuckle was bloody.  He was very stressed about the shopping.  He was not interested in seeing the lake.  He wanted to do nothing but hang out in the hotel room.  So, that's mostly what we did, and I got very few pictures.  This is about it.

Zack and AJ did not have the joyful reunion you might have expected.  They acknowledged each other when we got home, and then both went about their business.  Zack did seem to miss me, though.  Maybe he's on his way to being a momma's boy too.

There was some serious slacking (notice how I worded that in a way that implied blame absolutely nowhere) on Zack's bottle-to-sippy-cup transition, both while I was gone and a few days before I was gone.  So it's time to get cracking.


Rachael said...

I am so glad he did well! Yay! And you are a trooper to walk away with a bloody knuckle and still have the good spirits to tell about it... (smile)

Kim and Steve said...

Good job, AJ! I mean, Buddy! Apparently, rabbits do least on Peekaboo Barn.

Joey Lynn Resciniti said...

Awesome! Good job buddy - and mom!

Becki D said...

Congrats on the successful trip! I know you had a lot of worries about how it was all going to work out - glad to hear the worries were (mostly) for nothing!



#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs