You'd think after 2 1/2 years of ABA therapy, we'd be compliant, and done with aggression. And most of the time, we are. I have weekly meetings with the lead therapists and they tabulate the number of aggressions each boy had from that week (mostly biting and pinching) and the numbers have been way, way down. AJ actually had his first zero aggressions week.
But today has been rough for some reason, and yesterday wasn't exactly a walk in the park. I'm not sure what has changed, and it's exhausting to constantly try and come up with a reason for it. Has anything in the routine changed? Are there new therapists or teachers? A change in medication? Have either of them been sick, or not sleeping well? Is he hungry? What is the mysterious reason for this change in behaviors?
At least one of these things occurs practically all the time. And the reason is Fragile X. I get so tired of trying to think of what might have caused a behavior. And trying to figure out what to do about it. I hate when they ask me. I want to say, isn't that why you are here? If I knew what the heck to do with these kids, I wouldn't need a team of 8 therapists rotating through my house every day. One night this week three of them were here until almost 7:30. They were training someone, and I had no idea how much I rely on their leaving by 7:00 PM until they were here later. I was just desperate for them to leave so I could relax, put on my mental PJs. I mean, with people working in my house all afternoon, I can't really let my hair down, you know? And I didn't realize how much I need them to leave until they didn't.
There's even therapy on Saturday morning. I so look forward to Sundays, when nobody comes over!
Fragile X – 6th Form and Bus Passes
1 week ago