Tuesday, June 28, 2011

At the Waisman Center

A small miracle occurred this past weekend during our trip to Madison.  We all got along pretty well.  Nobody fought, nobody hurled, there was minimal crying, very little bleeding and only one black eye.

I love bringing the boys to the Waisman Center.  We are a special family everywhere we go, but not always special and different in a good way.  At the Waisman, we are very unique and special and honored for our differences.  And it's nice to feel honored, a little.  It's nice to feel that those differences make us great.

When we got there, we practically leapt out of the van and straight into the hotel pool.  Zack and AJ were very excited to go "wimming!"

AJ has grown gills, apparently, because he keeps dunking his head under water, on purpose.  Which really freaked me out the first few dozen times he did it.  It took several attempts but I finally got a little video of him doing it, at least for a second or two.

Both Zack and AJ were superb little workers at the Waisman. They both cooperated beautifully with the researchers and even seemed to enjoy it. One of the researchers told me she thought they both seemed so socially oriented. They both loved the attention. It helped that the tests they performed were formatted so much like the ABA therapy we have at home for 6 hours a day. The idea of "perform this action, get this reinforcer" is pretty basic for them at this point.
One of the things they had to do watch a couple of simple movies. All they had to do was sit and watch. Pretty easy, right? Except that no, it wasn't one of our Big Three (Dora, Diego, or The Wiggles), so the guys were not all that interested. They managed to get through them, though. It was just pictures and then a sentence that applied to one of the pictures - like maybe it would be a cat chasing a mouse, and a cat kissing a mouse, and the sentence would be "The cat chases the mouse" and then the hope is that the kid would look over at the picture of the cat chasing the mouse. They tracked the eye movements of the boys as they watched the movies. I thought it was fascinating. It is supposed to show their comprehension of sentences without actually asking them to indicate anything purposefully. It couldn't be less invasive. All they have to do is sit there and watch!

It was really interesting to watch.  Both little guys cooperated with every single activity.

On our way home we passed the capitol of Wisconsin, and then a few hours later passed through St. Paul and saw the Minnesota capitol.  Aliza was delighted to see two state capitols in one day.

Mark was pretty excited to get to see Camp Randall.  The boys were frustrated because they were not allowed to actually run around on the field.  I'm pretty sure at the moment we took this picture, the twin who is not pictured was trying to break through the "Emergency Only" door.  They wanted to get out on that open field badly.

The best part, though, had to have been watching the boys snuggle and settle down to sleep together.  They don't sleep in the same room, much less the same bed at home, and I loved getting to see them unwind together, watching Dora and slowly falling asleep.

Good night, Madison.

No comments:


#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs