Thursday, July 28, 2011

And summer rolls on

Did I ever mention that we are attempting to get a local Fragile X support group going?

I've been working on a website and a logo.

The Southern Minnesota Fragile X Support Group (although I already want to change that name.  It's too long and doesn't abbreviate well.  Plus, why are we blowing off northern Minnesota?) more or less started gathering steam last spring.  We have monthly coffee meetings and a few local Fragile X families have popped up and shown interest in working with a local group.

(I am thinking about Fragile X Association of Minnesota or Minnesota Fragile X Association.  That's a format a lot of state groups use.  I don't want to actually use the word "syndrome" because we want to include the other associated disorders, FXTAS and FXPOI.)

And next month we'll have a picnic where we can meet and get to know each other.  A few years ago another attempt was made to get a local group going, but it sputtered out after awhile, as I think the leader had trouble getting people to get involved.

I guess I'm going to have to be pushy.  **smile**

Anyway, if you happen to live locally and you don't know about the Southern Minnesota Fragile X Support Group (See what I'm saying?  It takes like a full minute to type all that out.), please email me or comment here and I'll hook you up. Ditto if you know someone who lives in Minnesota and is affected by Fragile X Syndrome, or any of the associated disorders.

In other news, today is the boys' last day of summer school.  Boo.  So much for my little one hour blocks of free time.  Aliza and I went out for breakfast this morning after they left.  A quick breakfast, because we also had to get groceries.  In an hour.

Tomorrow we go on a tour of the Historic State Theatre, where we'll be going to see The Wiggles.  They were so nice when I explained that my boys just need to walk around a little and calmly see the place, before they deal with the anxiety of the live show.  Which is coming up next week already!

Fun at the Park

Nice rabbit ears.  I don't think we've got our annual Christmas photo quite yet.

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