Thursday, November 10, 2011

STX209 Update: 7 Weeks and 4 Days

Well, we've been both home and healthy now, for almost a whole week.  Finally, we've been able to stay in a routine for a few days, and we are noticing the boys are calmer and happier.

I can't decide whether to attribute that to the return to a predictable routine, or the trial medication.

I'm trying not to see this through rose-colored glasses.  I'm trying to be realistic.

Zack is definitely calmer though, in the last week.  He bounces a little bit less.  He sits and lays down more.  And not because he has a fever.

And he talks much more.  Both of them do.

I was demonstrating to my parents and to one of our therapists how both boys can read the TV screen, when I bring up the menu of our DVR recorded Little Einstein episodes.  I'll highlight one and ask

"What's this one?"

And both boys can tell me.


For awhile, neither of them would say what the episode was, unless I asked them to.  But this morning both of them were watching me scroll through, shouting out which ones they wanted to see. 

"Sleeping Bassoon!"
"Good Knight Bad Knight!"
"Glass Slipper Ball!"
"Jump for Joey!"

Typically for twins and siblings, they could not agree on one.  But it was astonishing, to hear them shouting out words, trying to drown each other out!

The past couple of days AJ has been so happy.  He just smiles all the time, and chatters to himself.

I don't know.  Some of that might be a result of STX209.

But I'm still waiting for that "wow" moment.  The moment when one of them does something that is so stunning, we all stop and stare, jaws dropping to the floor.  The OMG moment.  Where we won't wonder if we are wearing rose-colored glasses.  We will know this stuff is magic.

1 comment:

Cari said...

With or without the meds, I hope you wait...I KNOW you'll get that OMG moment!


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