Wednesday, July 16, 2014

International Fragile X Conference Diary, Day 1

(Today is actually day 2, as I arrived yesterday, but this morning I'll record the notes about yesterday.)

The adventure started really at the Minneapolis/St. Paul airport, where I ran into not only a familiar friend, but a new friend from Michigan, who final leg of her trip was the same as ours.  I always wear one of my many Fragile X shirts when I travel, and especially when traveling to a conference - it's how we all can easily identify each other in airports, hotel lobbys, and in between.  So we met, chatted, and posed for a quick shot.

And I vow to have fewer chins in every future photo.  

The flight was as pleasant as 4 hours of barely moving at all can be, the Super Shuttle to the hotel was harrowing as I sat in the front seat watching my life flash before my eyes as the driver weaved through traffic, but all in all it was a blessedly short and uneventful trip.  Just how you would want it to be.

The hotel is of course, gorgeous and the staff, of course, could not be more gracious and helpful.  I'm in a room meant for a family, with a king size bed and a separate section with bunk beds, which is great and spacial but is just making me miss these guys,

because I can't help but think of how much they'd love this room and climbing on these beds.

Each conference I've attended has been progressively more emotionally impactive - or maybe it just seems that way, because I remember the recent ones better than the first.  It's both unsettling and wonderful to see all the kids with Fragile X who come with their folks to the conference.  At home, they are just my kids.  Here, I see the similarities between them and all these kids with Fragile X.  It magnifies how "not" like other children these boys of mine are.

Can't look at these pictures, though, and not adore them.  I took these snaps just a couple of hours before leaving town so I'd have recent shots handy.  So they are always with me.

I didn't do a good job of getting photos yesterday - I will do much better today!

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