I was hysterical for about a half hour and then I decided I was done being upset. I realize how lucky I am to have her at all, and there are many people who have it much, much worse.
Thursday, April 15, 2010
Got Some News Yesterday
My little girl is a carrier. Not one of my kids is spared the Fragile X gene. Well, I wanted to know and now I know.
I was hysterical for about a half hour and then I decided I was done being upset. I realize how lucky I am to have her at all, and there are many people who have it much, much worse.
I was hysterical for about a half hour and then I decided I was done being upset. I realize how lucky I am to have her at all, and there are many people who have it much, much worse.
Subscribe to:
Post Comments (Atom)
Labels
school
(29)
Fragile X
(18)
Zack
(16)
STX209
(14)
autism
(14)
sensory
(14)
Aliza
(13)
research
(13)
talking
(11)
funniest
(10)
medications
(10)
AJ
(9)
Feel Good Friday
(9)
anxiety
(9)
bottles
(8)
sippy cups
(8)
therapy
(8)
Temple Grandin
(7)
off topic
(7)
traveling with special needs children
(7)
videos
(7)
ABA therapy
(6)
Dora
(6)
Kindergarten
(6)
The Twin Thing
(6)
aggression
(6)
awareness
(6)
park
(6)
playing with toys
(6)
swimming
(6)
Featured
(5)
Partners in Policymaking
(5)
Wordless Wednesday
(5)
friends
(5)
sick kids
(5)
sleep
(5)
Chicago
(4)
Christmas
(4)
Church
(4)
social situations
(4)
Acceptance
(3)
Conference
(3)
Holland
(3)
IQ testing
(3)
Pictures
(3)
Wiggles
(3)
dance
(3)
fall
(3)
family
(3)
first day of school
(3)
holidays
(3)
in the news
(3)
language study
(3)
snow pictures
(3)
summer
(3)
Birthday Boys
(2)
Burnsville Fire Muster
(2)
Clonidine
(2)
Diego
(2)
Disability Day
(2)
Food Chronicles
(2)
Halloween
(2)
Minnesota Bloggers Conference
(2)
Our Wedding
(2)
Presents
(2)
Santa
(2)
Snowstorm
(2)
Target
(2)
The R Word
(2)
The Santa Experience
(2)
Twitter
(2)
Vacation Bible School
(2)
Waisman Center
(2)
YMCA
(2)
You Tube
(2)
apple orchard
(2)
blog hop
(2)
books
(2)
brushing
(2)
bubbles
(2)
candy
(2)
chewys
(2)
childcare for special needs children
(2)
food issues in Fragile X and autistic children
(2)
guest blogs
(2)
haircuts
(2)
homework
(2)
hyperactivity
(2)
iPad
(2)
learning to talk
(2)
overstimulation
(2)
parade
(2)
pink shirt
(2)
playing outside
(2)
politics
(2)
poop
(2)
protecting autistic children
(2)
riding a bike
(2)
spelling
(2)
staying positive
(2)
trampoline
(2)
typical Fragile X characteristics
(2)
vacation
(2)
zoo animals
(2)
#youmightbeanautismparentif
(1)
ARC
(1)
Aliza the playwright
(1)
Alphabitty Moments
(1)
American Girl
(1)
Arbaclofen
(1)
Arbitrary Thoughts
(1)
CNN Hero of 2011
(1)
Cabin Fever in Minnesota
(1)
Carly Fleischmann
(1)
Children's Museum
(1)
Courage Center
(1)
Curcumin
(1)
DVD player
(1)
Dolphin Tale
(1)
Doritos
(1)
ECSE Parent Retreat
(1)
Easter
(1)
Everything I need to know...
(1)
Evil Overlord
(1)
Flash Gordon
(1)
Fragile X advocate
(1)
Fragile X and autism
(1)
Fragile X carriers
(1)
Fragile X presentation
(1)
Fragile X statistics
(1)
Gabrielle Giffords
(1)
Galveston
(1)
Girls' Night Out
(1)
Giving Spirit
(1)
Good Morning
(1)
Great Quotes
(1)
Holly
(1)
IEP Meeting
(1)
Jack Jablonski
(1)
Joke
(1)
Kindle
(1)
Lily
(1)
Little Einsteins
(1)
MVMOM Used Clothing and Equipment Sale
(1)
Mad Gab
(1)
Mall of America
(1)
McDonalds
(1)
Melatonin
(1)
Mother's Day
(1)
Operation Beautiful
(1)
Photoshop
(1)
RSS feed
(1)
RUSH University
(1)
Retreat
(1)
San Diego
(1)
Seroquel
(1)
Strep
(1)
Stylish Blog Award
(1)
Sunday School
(1)
Sundays
(1)
TV
(1)
Tegretol
(1)
Ten Commandments
(1)
The Autism Store
(1)
The Right Things to say to parents of special needs children
(1)
The Wiggles
(1)
What I've Learned
(1)
What's your song?
(1)
Wii games
(1)
Winner Winner Chicken Dinner
(1)
Wonder Pets
(1)
Wordful Wednesday
(1)
Words of Wisdom
(1)
Zoloft
(1)
acronyms
(1)
advocacy
(1)
affection
(1)
antibullying
(1)
apps for autism
(1)
autism brushing
(1)
backyard
(1)
bath toys
(1)
beds
(1)
biting
(1)
blog change
(1)
blogging
(1)
bus
(1)
cats
(1)
childhood
(1)
chocolate
(1)
circumin
(1)
clinical trials
(1)
coffee
(1)
communication
(1)
computer
(1)
daddy
(1)
dentist
(1)
diagnosis
(1)
diapers
(1)
dogs
(1)
early intervention
(1)
earrings
(1)
electronic gadgets
(1)
electronics
(1)
falling asleep at school
(1)
fashion
(1)
fear
(1)
field trip
(1)
fireworks
(1)
forms
(1)
forts
(1)
games
(1)
getting carsick
(1)
glasses
(1)
going home
(1)
hearing test
(1)
home life
(1)
hotel
(1)
hugging
(1)
iPad apps
(1)
iPad apps for autism
(1)
inspiration
(1)
journal entry
(1)
kids with Fragile X and animals
(1)
kisses
(1)
leaves
(1)
losing teeth
(1)
makeup
(1)
mall
(1)
marcia braden
(1)
minocycline
(1)
monkeys
(1)
mosquito bites
(1)
movies
(1)
names
(1)
naughtiness
(1)
neighbors
(1)
nicknames
(1)
nightmares
(1)
oral sensory
(1)
other bloggers
(1)
outside
(1)
penicillin
(1)
people with disabilities
(1)
pets
(1)
pharmacy fun
(1)
photography
(1)
pinching
(1)
poem
(1)
potty training
(1)
rash
(1)
reading to kids
(1)
routine
(1)
schedules
(1)
school notes
(1)
school pictures
(1)
screaming
(1)
self image
(1)
self-checkouts
(1)
smile
(1)
speaking of the unspeakable
(1)
special education evaluation
(1)
special needs kids
(1)
special needs parents
(1)
spoon feeding
(1)
spring break
(1)
stimming
(1)
sunshine
(1)
talking to kindergarteners
(1)
thankful
(1)
thanksgiving
(1)
that window/mirror thing
(1)
the Shedd Aquarium
(1)
the rapid passage of time
(1)
topless
(1)
twins with special needs
(1)
typical kids
(1)
typing
(1)
video games
(1)
volunteering
(1)
water play
(1)
way-back-Wednesday
(1)
when a special needs parent dies
(1)
winter
(1)
wonder
(1)
3 Heartfelt Commentary:
Sorry to hear this news. I can understand your being upset. Maybe by the time she is ready to have kids, medical advances will make it a non-issue.
What a beautiful picture. I know the news is hard.
Hi, this is my first visit to your blog...I had kind of taken a break from blogging (good old facebook!). Yes, the news is hard to get, but hopefully, she'll have greater options when she's older. All four of our children, 20,18,16,and 3, have the full mutation. The 20 year old, our daughter, is one of the lucky ones. We wouldn't have guessed she had the gene if we hadn't had her tested when she was 12. We had her tested so that we could participate in a study, but because of the results, we weren't eligible. She took it in stride when I told her, and she still does!
It's nice to "meet" you. Your kids are adorable!
Post a Comment