- Then, they really had baby faces, probably partly due to their cognitive delays. They may have been three years old but they had the abilities and emotions of 18 month olds. Now, little-boy faces have replaced the baby features, but the expressions are still very toddler-like. Now roughly once a day I look at them from across the room and for just a second I'm startled by how large they are. Taller than some of their sister's seven-year-old friends.
- Then, they watched video after video after video. It's all they did for entertainment -- bounce around in front of the TV watching a video. Now we can sometimes get away from the TV and do things like puzzles, fun folders, and reading books. Lots and lots of books!
- Then, neither of them would have anything to do with other kids. Now they both have socialized with other kids, both special needs and typical, in their preschool. And at home, AJ shows clear and strong preference for being where kids are; if Aliza is outside with two of three of her little friends, AJ screams at the back door until I let him go out. Zack isn't quite as delighted by other kids, but he's not antisocial, either. He wants to be where people are. If we are all outside, he wants to be outside with us.
- Then, they subsisted mostly on cereal; now.......well, not everything is different!
My five-year-old boys are into The Wiggles.
That is one reason this conference is such a blessing for moms like me. To be surrounded, for a few days, by parents of kids just like mine ... it's almost an indescribable treasure. I expend so much energy explaining my kids to others, or deciding whether it's even worth explaining. I don't have to explain anything to anyone, there.
I also love seeing all the top Fragile X research brass; for me it's like being in Hollywood. I remember once at the last conference I found myself in the same elevator as Katie Clapp. I nearly died, I couldn't say a word, it might as well have been George Clooney. It's a little silly but these people mean so much to me and the whole Fragile X community, I'm giddy with excitement at seeing them again and maybe even having a chance to talk to them!