High and low points so far on our trip to Madison for the language study:
~All my kids have sensitive tummies. I should always have a roll of paper towels in the car. Forever. Always.
~When a kid throws up and then cries....it's really hard not to throw up and cry right along with them.
~Swimming in a pool with mom just isn't as fun as it is with other kids. If AJ could talk in full sentences, he'd have told me this.
~Neither Zack nor AJ seems very upset so far about their being separated. Neither of them was all that into talking or looking at each other when we Skyped today. We will try again tomorrow, but so far it looks like I laid awake worrying about the separation for nothing. Of course, it's just been one day....now we have the weekend coming up, where Zack doesn't have school and therapy to distract from his brother's absence.
~You may think a peanut butter and jelly sandwich is better on ciabatta bread than on regular toast, but AJ would not agree with that.
~This area of Madison is full of students who wear all black and dart across streets after dark. They don't bother with crosswalks. I would have taken pictures to show the all-black figures had I not been so worried about trying not to kill them.
~AJ functions pretty well when I'm not in the room. When I'm there, he whines and hides behind me. When I leave, he sits down and gets down to business.
~Even so, I'm convinced he can see me through that window/mirror. You know, the one where in his room it looks like a mirror, but in the room next door, it's a window and I can see what they are doing in there. He keeps coming over to the "mirror" and pointing and babbling. He knows that's no ordinary mirror.
~When he's working, I'm overcome with pride at how adorable, hilarious and brilliant (well, you know what I mean by that) he is. I can't stop smiling. And I can't help but notice how the researchers working with him are pretty serious, writing things down, and not at all engrossed in his adorable-ness like I am.
~Tomorrow they are going to attempt a audiology test on AJ. He has never cooperated with a hearing test in his life. So this ought to be entertaining.
Word of the Week 2/5/2025 Grateful #WotW
9 hours ago
3 comments:
Good luck with the hearing test. "When I say 'go', you put the peg in the hole. Ready? GOOOOooooooo!" ...and they do nothing. But you know they heard. :-/
Do you guys do Brain Gym? Zach has been learning and teaching me. It's amazing to be taught by them.
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I will tell you that it was a rough week at work with my kiddo's. I can change diapers all day long, but I do not do well with throw up and one of my kids started throwing up earlier this week. I love the kid but I had to get one of my assistants to help him otherwise I would have joining him in heaving. Also, I don't know if your kids have seizures, but several of mine do and they had been doing very well this year, no seizures for 3 months and then BAM-out of the blue he has a seizure. Scariest thing I have ever seen-I kept saying my boy, "you're okay, it'll be okay" but I think I was really saying to myself.
But like you, there was joy this week too. Two of my kiddo's said new words this week and another kiddo made several attempts to initiate contact with me-which is SUPER. I also beamed with pride.
Good luck with the hearing test and I'm glad your boys adjusted well to the separation.
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