I read. A lot. Of books. I always have. I'm a little picky, because life is too short (and too busy) to read boring books. If something isn't grabbing my attention right from the start, I set it aside. I read fiction and nonfiction.
Since my boys' diagnosis of Fragile X Syndrome my interest shifted some in the direction of stories like ours; that is, children with difficult diagnoses, autism, genetics, and family.
Here are some of my favorite books read lately, along with a few words about them. One of these days I'll get around to posting a page with a bigger list, but this will have to do for now. I'm pasting in pictures of the book covers, too, because like I've mentioned before -- I need to see the covers for some unknown, mental reason. It's a psychological need.
While a woman is finding out her toddler son, who has many developmental delays, has Fragile X Snydrome, she simultaneously begins reading the diary of an ancestor of hers who had brothers, cousins and uncles who had the minds of children and whose family was considered to be "cursed." The diary opens her eyes to both what the diagnosis will mean, and how it has passed down through the generations in her family.
I had the pleasure of meeting Maureen Lang at a book event at the Mall of America a few years ago. She's a wonderful author and I love that she weaved Fragile X into a story that showed how easily it could appear in any unsuspecting, seemingly ordinary family.
Thicker than Water; Essays by Adult Children of People with Disabilities edited by Don Meyer
Other books I read, and then obsessed over for awhile because I just couldn't get them out of my head:
This was tough to read. As a mother, I identified with Angela and could not imagine the anguish she felt. However, as hard as it was to read, it was an incredibly engrossing story that I'm glad I got through. Every time I read a review of someone's book that claims to be a memoir of a terrible childhood I think "yeah, well, they haven't read Angela's Ashes."
Connecting, 30 years later.
2 days ago