Tuesday, August 16, 2011

Therapy, sociability, and aggression, oh my!

At the Fragile X picnic this past weekend, I noticed that my friend's son Timothy, almost 6 years old with Fragile X, was so social.  He played catch with the other kids.  Just jumped right in and hung out with them.  He was such a little joiner!

Zack and AJ, on the other hand, either took off for the park where they could play alone, or stayed glued to their DVD player ignoring everyone and everything going on around them.  When Aliza and the other kids started blowing bubbles, AJ did go over to check that out briefly, but he went right back to the movie.

Now, I brought the DVD player specifically because I knew it would keep them busy and entertained.  I knew I would be pretty busy greeting everyone and making sure everyone felt welcome and was having fun.   I knew that if they had their movies, it would be easier for my mom and dad to keep track of them.

But I so wished they would have played with the other Fragile X and nonFragile X kids, like Timothy did.

My boys' daily routine is different than Timothy's.  Zack and AJ get around 6 hours a day of ABA therapy, one on one.  Timothy has 4 hours a day of classroom style therapy and spends some time in daycare.

It could also be the fact that Zack and AJ are twins, and have each other to play with and lean on.  They night not need other people as much as a singleton might.

I know, I know.  I shouldn't compare them.

All I know for sure is, I was jealous that Timothy was out there, participating a little bit in some fun with other kids, and my boys didn't even appear to notice that other kids were there.

Zack is having such a hard time lately.  His aggressive behaviors are really intense.  We are really feeling the loss of the Tegretol.  I am worried about him starting school with this level of anxiety.  I wish there was something else I could give him right now, but we can't add any meds if we want to be a part of the clinical trial for Arbaclofen. 

I think today I'll try brushing him.  I haven't done that in awhile.

Brushing is part of a sensory diet, with a plastic, surgical-type brush that looks like this. --

You rub the brush methodically and briskly over the arms, legs, and back.  It is supposed to help them stay calm and focused.  For more information on brushing, click here.

1 comment:

Dimple said...

God bless you with wisdom to be Mother to your boys.


#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs