Saturday, February 04, 2012

This Week's Adventures

I can't believe almost a week has gone by since I was last here!  Sorry about that.

I thought about it yesterday in the car, on our way back from Chicago.  I'm going to make up for it by posting something every single day next week.  Even if it's only a picture or a quote.  Every day there will be something new out here.

So yes, we just returned from a trip to see Dr. Berry Kravis at RUSH for the STX209 trial extension.  Getting ready to go on this trip required a bit more prep than the others did - and it had nothing to do with the trial or the boys.  It was the car.

My van has 151-something thousand miles on it and I intend to bring it to 300.  It's been a real trooper, taking us to Grandma & Grandpa's house dozens of times through the years, to Madison to visit the Waisman Center a couple of times, and to Chicago (825 miles or so, round trip) five times in the past six months.

So lately, once in awhile, my old, trusty van gets close to overheating, without actually overheating.  The gage goes up, very close to the H, and then goes back down to normal.

A few days before our trip, however, it ventured all the way up to the H and lit up, and gently dinged.  A very polite warning that the engine is way too warm and the car might blow up or something.

Luckily I had an oil change appointment on Tuesday and I told Joe, our faithful car fixer guy, about the red H and the overheating.  He looked very worried.  He knew we were due to drive to Chicago this week.

Sure enough, he came back into the waiting room after hoisting the van up to check out it's underparts and said it was bad, very very bad.  He used other car-part terms and motor fixer-mumbo jumbo words I can't recall.  What I remember is the way he looked sad, and shook his head, and said I should talk to Mark about whether it's even worth fixing.

Sheesh.

I should mention that we love Joe and we trust him completely.

Of course we're going to fix my van.  But first things first - how were we going to get to Chicago?  Mark's car is quite a bit older and has quite a few more miles on it than mine does - we didn't feel comfortable piling the kids in it and driving across a couple of states.

So, as it turns out, my parents are at their winter place in Galveston at the moment.  And my dad's car is waiting patiently in their garage for someone to come drive it.

I'm just that driver.

It just required a trip to my parents' house to get the car - a 180 mile round trip - and luckily my father in law came to the rescue earlier this week, and drove me there.  Thank God for close and supportive family!

So the five of us drove 825 miles to Chicago and back this week, in my dad's considerably-smaller-than-a-minivan but functional-and-trustworthy car.  It was a cozy, tight trip but we got through it with no bigger trouble than a few cramped, sore legs.

More on the trial and how things are going with the boys (great, by the way), later.  Have to get ready to go have coffee with some Fragile X parent friends!

1 comment:

Kim and Steve said...

Whew, a good ending! My favorite part- "great, by the way!"

Labels

#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs