Monday, April 09, 2012

Anxiety on the Rocks

Shaken, not stirred.  That's how I like my anxiety.

The boys have developed a new way to express their anxiety.  They've always been calmed by counting, but lately when stressed, the two of them will shout "nine, TEN!"  Over and over.  "nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!  nine, TEN!"

Out and about, people tend to notice the kids who shout out two numbers much moreso than they noticed two kids who randomly counted things.  Not that I care what people think. 

Otherwise, they still let it out in their usual ways; AJ cries and chews on his clothes, and Zack pinches people and screams.

Today after school we had speech and occupational therapy at Courage Center.  It's kind of a long day for them, but they are usually up for it.

When they were all done with therapy, they come to me in the busy waiting room, ready to go.  Zack needs to go right then -- he's got no patience for my chatting with the therapists, getting the lowdown on how they performed.  He is not interested in stopping in the waiting room for even a second.  He barrels right on out, unless I hold him back.  Then he starts in on the therapist.  The poor woman, who only moments ago he was having a great time with, is now the target of his aggression.  He reaches to pinch, we both tell him no, to be gentle....

Anyway, this was the scene today, too.  Both boys started for the door in front of me while I said goodbye to the therapists, and another boy in the waiting room, who was there for therapy (and who I'm guessing has autism), suddenly screamed when Zack walked past him "HEY!  THAT KID PINCHED ME!  REALLY HARD ON PURPOSE!"

Time stopped, while everyone stopped what they were doing to look over.  Zack started to scream and cry.  AJ backed against the door.

And it's not like this has never happened before.  Actually, this happens way too often.  How come every time, though, I totally can't remember how to handle it?  I have rehearsed this in my mind and in real life.  It happens.  Zack pinches and sometimes bites kids.  But I still I stopped for a minute, not sure what to do.  The kid's mom told him she was sure Zack didn't mean to hurt him.  The kid continued to holler.  "YES HE DID!  HE PINCHED ME ON PURPOSE!"

I told the kid I was sorry too, and that Zack gets really really nervous around people.  I told Zack "Zack, say 'I'm sorry.'"  And then I said a superquick silent prayer, because you never know if Zack is going to say what you tell him to say.  PleasesaysorryZackpleasepleasepleasesaysorry.

And he did.  "Sowy."  And then he cried.  On the way out to the car, Zack got over it and stopped crying and screaming, and AJ started to cry.  AJ cried for about 45 minutes.  He was really upset about the whole thing.

Anyway, you see what I mean (in the post before this one), when I said I wished for a little more from this medication that is supposed to help with social anxiety? I can't take Zack anywhere without it ramping up anxiety for all of us, because you just never know how he's going to do.

And I can't help but think about the fact that we just increased the dosage for both boys, and the last time we increased their dosages, AJ cried all the time, and Zack became a lot more aggressive.

It's too soon to draw those conclusions, but it is on my mind.  Sigh.

And now I will wrap up this stressful and unhappy post with a couple of cute swimming pictures, so it's not all doom and gloom.





1 comment:

Twin Engines said...

Oy, "sowy," wish I had the right words to comment because I can't hug you now.

Related Posts with Thumbnails

Labels

#youmightbeanautismparentif (1) 2012 in review (1) 9/11 memories (1) ABA therapy (8) Acceptance (5) acronyms (1) advocacy (1) affection (1) aggression (8) AJ (11) Aliza (20) Aliza the playwright (1) All I really need to know... (1) Alphabitty Moments (1) American Girl (2) Ann Coulter (1) antibullying (1) anxiety (17) anxiety in parents of children with special needs (2) apple orchard (2) apps for autism (1) AppSmitten (1) Arbaclofen (13) Arbitrary Thoughts (1) ARC (1) autism (25) autism brushing (2) autism portrayed in TV shows (1) Autism Shines (1) awareness (15) backyard (1) baseball (2) bath toys (1) beds (1) behavior problems (4) being tall (1) Birthday Boys (3) biting (4) blog change (1) blog hop (2) blogging (3) books (7) bottles (12) brushing (3) bubbles (3) Burnsville Fire Muster (4) bus (1) Cabin Fever in Minnesota (1) candy (2) Carly Fleischmann (4) Carly's Voice (1) cats (1) cats and dogs (1) chewys (2) Chicago (8) childcare for special needs children (3) childhood (1) Children's Museum (1) chocolate (1) Christmas (8) Church (4) circumin (1) clinical trials (1) Clonidine (2) CNN Hero of 2011 (1) coffee (1) communication (1) comparisons (1) computer (1) Conference (5) cost of special education (2) Courage Center (1) Curcumin (1) daddy (1) dance (5) dance competition (2) dance moms (2) Dental surgery (1) dentist (2) developmental milestones (1) diagnosis (3) diapers (2) Diego (2) Disability Day (2) dogs (1) Dolphin Tale (1) Doomsday Preparation (1) Dora (6) Doritos (2) drug trials (1) DVD player (1) early intervention (1) earrings (1) Easter (1) ECSE Parent Retreat (1) electronic gadgets (1) electronics (1) Everything I need to know... (1) Evil Overlord (1) fall (3) falling asleep at school (1) family (5) fashion (1) fear (1) Featured (5) Feel Good Friday (10) field trip (1) fireworks (1) first day of school (4) Flash Gordon (1) Food Chronicles (2) food issues in Fragile X and autistic children (3) forms (1) forts (1) Fragile Face of God (1) Fragile X (28) Fragile X advocate (1) Fragile X and autism (1) Fragile X carriers (2) Fragile X in the news (2) Fragile X presentation (1) Fragile X statistics (2) Fragile X Writers (14) friends (5) fundraiser for Fragile X (1) funniest (14) Gabrielle Giffords (1) Galveston (3) games (1) getting carsick (1) Girls' Night Out (1) Giving Spirit (1) glasses (1) global warming (1) going home (1) Good Morning (1) Great Quotes (2) guest blogs (3) guest post (2) haircuts (3) Halloween (2) hearing test (1) Heaven is for Real (1) hippotherapy (2) holidays (5) Holland (4) Holly (3) home life (1) homework (3) hotel (1) hugging (3) hyperactivity (2) IEP Meeting (2) IEPs (1) in the news (4) inclusion (2) inspiration (3) integration (1) iPad (4) iPad apps (2) iPad apps for autism (3) IQ testing (4) Jack Jablonski (2) January First (1) Joke (1) journal entry (1) kids with Fragile X and animals (1) Kindergarten (6) Kindle (1) kisses (1) language study (3) learning to talk (5) leaves (1) lemonade stand (1) Lily (1) Little Einsteins (1) losing teeth (1) Mad Gab (1) makeup (1) mall (1) Mall of America (2) marcia braden (1) McDonalds (1) media sensationalization (2) medications (10) Melatonin (1) Miami (1) MIND Institute (2) Minnesota Bloggers Conference (2) minocycline (1) Miracle League (3) monkeys (1) mosquito bites (1) Mother's Day (1) movies (3) MVMOM Used Clothing and Equipment Sale (1) names (1) naughtiness (1) neighbors (1) nicknames (1) nightmares (1) normal (1) off topic (9) one thing leads to another (1) Operation Beautiful (1) oral sensory (2) orphan drug act (1) other bloggers (1) Our Wedding (2) outside (2) overstimulation (3) panic attacks (1) parade (3) parental stress (1) Parenthood (1) park (7) Partners in Policymaking (6) penicillin (1) people with disabilities (5) pets (1) pharmacy fun (1) photography (1) Photoshop (1) picnic (1) Pictures (3) pinching (2) pink shirt (4) Pinterest (1) playing outside (7) playing with toys (7) poem (1) politics (2) poop (4) potty training (10) Presents (2) protecting autistic children (2) rash (1) reading to kids (1) research (15) Retreat (1) riding a bike (2) Roger Ebert (1) routine (1) RSS feed (1) RUSH University (1) San Diego (1) Sandy Hook Elementary (1) Santa (3) schedules (2) school (37) school bus (2) school notes (1) school pictures (2) screaming (2) self image (2) self-checkouts (1) sensory (20) Seroquel (1) siblings with developmental delays (2) sick kids (6) sippy cups (11) sleep (5) smile (1) snow pictures (5) Snowstorm (3) social situations (7) speaking of the unspeakable (1) special education (2) special education evaluation (1) special needs kids (1) special needs parents (2) Special Needs Ryan Gosling (6) Special Olympics (1) spelling (2) spoon feeding (2) spring break (3) staying positive (2) stimming (4) Strep (1) STX209 (27) Stylish Blog Award (1) summer (7) Sunday School (1) Sundays (1) sunshine (1) survival mode (1) swimming (9) talking (13) talking to kindergarteners (2) Target (2) teacher's aides (1) Tegretol (1) Temple Grandin (9) Ten Commandments (1) textbook case of Fragile X (1) thankful (1) thanksgiving (2) that window/mirror thing (1) The Autism Store (1) The R Word (3) the rapid passage of time (1) The Right Things to say to parents of special needs children (1) The Santa Experience (3) the Shedd Aquarium (1) The Twin Thing (8) The Wiggles (2) therapeutic horseback riding (2) therapy (12) This is Autism (1) topless (1) trampoline (2) traveling with special needs children (12) TV (1) twins with special needs (3) Twitter (2) typical Fragile X characteristics (2) typical kids (1) typing (1) vacation (3) Vacation Bible School (2) video games (1) videos (8) volunteering (1) Waisman Center (4) water play (3) way-back-Wednesday (1) What I've Learned (1) What's your song? (1) when a special needs parent dies (1) Wiggles (4) Wii games (1) Winner Winner Chicken Dinner (1) winter (2) wonder (1) Wonder Pets (1) Wordful Wednesday (1) Wordless Wednesday (6) Words of Wisdom (1) World Autism Awareness Day (1) YMCA (2) You Tube (2) Zack (22) Zoloft (1) zoo animals (2)