I talked to the boys' 2nd grade class this morning about Fragile X and autism. They couldn't have been a nicer audience. Kids are so honest and open. They asked a lot of questions and talked about what they've noticed about Zack and AJ. They were so totally, innocently, nonjudgmentally sweet and kind. I wonder when that changes - the enthusiasm to learn. I wonder when I'll be met with bored stares instead of shining, excited smiles. Maybe around 5th or 6th? Hopefully I'll always be something new and exciting the kids get to see that day.
I told their teacher about the Mouse & Tracy hyperarousal exercise last week, and she did the exercise with the kids yesterday, in preparation for my coming. She put the kids into groups of three; one of them pretends to be a child with autism, while the other two ask questions, and shout things at them, and wave their hands in their faces, and touch their backs and shoulders and arms, and basically do whatever they can to make the child pretending to have autism uncomfortable.
Afterward, the "autistic" kids discussed how they felt. They wrote a list on the board:
felt like I was going to throw up
a little angry
wanted to get out of here
I can't tell you how happy I was to see that. These kids got it, before I even showed up! They understood how kids with autism feel different.
I went on to talk about Fragile X Syndrome. I told them it was a lot like autism. I asked them if they knew what genes and DNA were, and they all stared at me blankly, so I explained that genes are the tiny, tiny things that all of us are made up of. We all have millions of little genes that make up our bodies, and in Fragile X, a little piece of one of those genes doesn't work right. That's all that's different between Zack and AJ, and all the other kids - one tiny piece of one tiny gene.
So much more alike than different.
I told them some of the ways Zack and AJ are affected by Fragile X. How it makes them feel. I asked the kids, "how would you feel if, right now, unexpectedly, a firecracker went off right in the middle of this classroom?"
They said they wouldn't like it. They'd be scared.
I said well, when someone shuts a door kind of loudly, or maybe drops a book down onto a desk, it sounds as loud as a firecracker to Zack. It hurts his ears and it scares him.
I asked them, "If a firecracker went off in the classroom, and scared you, do you think you could sit right down and work on your math assignment?"
They all shook their heads. No, they'd be too upset. I explained that that is why the boys have to do their studying in the autism room at school - because it's quieter and easier for them to concentrate on their studies there.
I also told them about how hard it is for Zack and AJ to talk. I told the kids that my boys have thoughts in their heads, just like they all do, only they can't get the thoughts to come out of their mouths. They can't make the words come; at least not more than a couple, simple words at a time. I asked them how frustrated would you be if you couldn't say what you wanted to say? If you raised your hands to say something, and then opened your mouths, but nothing came out?"
They agreed, that wouldn't be too much fun. Kids love to be called on and allowed to speak.
I asked them what other things they noticed about Zack and AJ when they were in the classroom.
"talking a lot, really loud sometimes."
"chewing on stuff."
"can't be still."
"Zack puts his fingers in his ears."
The kids were really observant. I told them that a lot of the things they do are because they are anxious and nervous. They do a lot of little things just to help themselves feel better.
We continued to borrow from the Holly Roos book of How to Talk to Kids About Fragile X (what? She hasn't written a book? Well she should....) We made a big list on the whiteboard (chalkboards are so 1990s) of things the kids like to do, and things they like about school.
playing in leaves
playing with friends
This was a very popular activity. They could have done that all day long.
We went through the lists, and I asked the kids if they thought Zack and AJ liked doing these things, too. If they did, I circled the item. If not, I crossed it out.
In the end, we had circled a lot more than we crossed out. I pointed out how Zack and AJ like almost all the same things other kids do. They are much more alike than different!
One little blonde boy piped up. "Yesterday, I said hi to AJ, and he said hi back to me without anyone telling him to."
How great was that? I told him that was wonderful. Loving how these kids reach out to AJ and Zack.
"You can all say hi to both boys," I told them. "They might say hi back. You can also give them five. You know, either hold your hand up, or out, and say "gimme five! And if you hold out both hands, they'll give you 'two fives!'"
I told them what a great class they were, and how they had asked all good questions. I told them it was okay to ask about Zack and AJ, or really anyone with a disability. It was okay to notice that they are a little different. It's okay if they don't understand them all the time. But it was never, never okay to make fun of a person with any disability, or tease them, or call them names.
Speaking of which ...
I couldn't help but think, if only someone had come in and talked to Ann Coulter's 2nd grade class about this. It's too bad she couldn't have been there today. She needed that speech a lot more than that group of 2nd graders did. As I was telling them about it not being okay to call others names or tease them, looking at all those sweet, honest, not-a-mean-bone-in-their-bodies kids, I thought, they would never do that anyway.
Way back in the day, someone needed to explain to little Annie Coulter that it is not okay to call people names. That it is never okay to call anyone a retard.
We are just so much more connected than ever. What might have been acceptable in certain small company is now tweeted across the world. Audiences are bigger than ever. It's important to remember, especially when online, to watch our words. It doesn't matter who it is - a special needs person, a typical person, a classmate, a stranger, a celebrity, a smart person, someone more challenged, or the President of the United States - it's never okay to call anyone derogatory names. There are better ways to communicate, and name calling reduces you to the status of the schoolyard bully, instead of a respected Fox News journalist.
Which leads me to another question I just have to ask - how come she's not fired for things like this? I understand that we all have the right to free speech, but it does have some limitations - I looked it up, here.
You can't just say whatever you want, whenever you want. You can't say anything that could be presented as....
Clear and Present Danger
Libel and Slander
Conflict with other Legitimate Social or Governmental Issues
Time, Place and Manner
Based on at least two of these, I think Fox News has grounds to fire her. Media people get fired all the time for shooting off their mouths. Firing her would set a standard for friendly, no harmful speech. If she had said anything remotely racist, it wouldn't have been tolerated. This should be no different.
And now I've gone off on a bit of a tangent. I couldn't help but think about it this morning, though, after talking to the kids. They were so refreshingly receptive. Completely open to the idea that they COULD be friends with someone with a disability. She could learn a lot from them.
#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals
Fragile X Blogs
Special Needs Blogs
Action alert for San Diego, California late May, 2018. ABA Leaks finds yet another year of the Association for Behavior Analysis International's (ABAI's) intransigent, all-out support of extremely painful Applied Behavior Analysis (ABA) electric skin shock, what the UN specifically calls "torture," even as over 200,000 outraged global citizens have petitioned the FDA to finalize its proposed ban on their so-called "skin shock therapy." Does Maria Malott, ABAI CEO, fully comprehend how cruel and heartless she appears to be? We don't think so. This is not psychiatry's ECT brain shock. ABA admits it intends to "effectively" cause pain, and it does, though ineffectively.1 day ago