Wednesday, February 20, 2013

Birthdays are for Celebrating

Last week, AJ and Zachary turned 8.  I posted this photo on Facebook on their birthday.  It has always been one of my favorites.
 
 
The thing about getting a diagnosis like Fragile X for your children is, you forever see their youth in two sections - before you knew, and after.

This is Zack and AJ's 12 month photos.  This is just two months before we knew.

They were sitting up independently at 12 months, but that was about it.  No crawling, no pulling up on furniture, certainly no walking.  Zack could roll in different directions with some purpose, but that was the extent of their mobility.

I love their happy, huge smiles in these photos.  They had no idea they were developmentally delayed already, barely a year old.  Really, none of us had any idea of the permanence of it.  I still thought they'd catch up, at this point.


But while a little reminiscing on the part of the parents is probably inevitable, birthdays are ultimately for celebrating.  Every year on Zack and AJ's birthday we try to do something that is fun especially for them.  For the past couple of years we've gone to a small indoor waterpark just outside of the cities.  It's perfect for them and they always have a great time.

We haven't really had birthday parties for them, but this year we went a little more the traditional route.

We took them to Pump It Up.  They have individual rooms with inflatable slides, bouncy houses, and obstacle courses.  It's all brightly colored and they play fun music while kids jump and run around for a little over an hour, before settling down in a party room for snacks, cake, and presents.

For kids with sensory issues, it can be both a dream and a nightmare.  While they revel in the chance to jump, roll, slide, and climb, the other kids and the music can be too much input for them.

They do have a "sensory night" the third Monday of every month, but then too, it gets crowded.    I'm never quite sure how Zack in particular is going to react to being in a big crowd of boisterous kids.

With a few small provisions, we made Pump It Up into a great party location for the boys.  I told the party people that I didn't want to music playing.  We only invited the boys' cousins and a very few close friends, so it was never crowded.

And it was a lot of fun.





And the winner is Lexie, by an entire body length.





Zack had to take a break after awhile and sit with his iPad, but both boys really had a lot of fun.  It was just about as wonderful for them as I hoped it would be.  AJ sure did love that slide.


Mickey Mouse on the iPad, and on the cupcakes!

As is the case with many parties, Zack had to be the first to leave - Mark took him out to the car immediately after we'd opened the presents.  He was beyond done (overdone, even), and between Mark and I, we'd picked him up off the floor for the last time.

AJ was whiny, too, when it was all over.  "Do you want to go home?" I asked him.

"No," he answered.  "Slide?"

He was ready for another go!

We might have to try that sensory night, one of these days.  I underestimated their love for Pump it Up!

1 comment:

Rachael said...

You are such a great mom!

Related Posts with Thumbnails

Labels

#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs