For years now, Mrs. Rogers Neighborhood has been one of the Fragile X blogs in the list at the bottom of this blog. Mrs. Rogers, Cindi, is mom to two sons with Fragile X, both in their 20s, both not mildly affected. (See what I did there? I avoided having to say it. Hello denial, my good friend.)
Like it's namesake, Mrs. Rogers Neighborhood is a place where things run smoothly and by a comfortingly predictable routine, which makes life manageable for two boys living with all the challenges Fragile X can toss their way.
Like it's namesake, Mrs. Rogers Neighborhood is a place where things run smoothly and by a comfortingly predictable routine, which makes life manageable for two boys living with all the challenges Fragile X can toss their way.
In addition to writing a blog Cindi has presented at the International Fragile X Conferences for years, providing ideas and tips for helping people with Fragile X and other cognitive disabilities learn to live as independently as possible. She's amazing, she's brilliant, she's relatable, and she's completely crazy. That's what I thought, for awhile, because her methods for organizing her sons' lives is so ... well, methodical. (I feel like I can call her crazy because she knows I love her and mean it in a good way.)
Meticulous schedules. Remodeling and additions to their home. Vacationing in "Rocket," their RV, so they can basically bring the comforts of home everywhere they go. I don't think she's ever seen a problem she didn't stare down and beat into submission.
She is so together. She is so self assured. How did she get to be like that? Presuming she started out a total wreck like the rest of us. How the heck did she get there?
I can't wait to read her new book, in the hopes that these questions will finally be answered!
Cindi is a real role model for me, not just as a mother to children with Fragile X but as a speaker and educator, and now an author! I was green with envy when I saw that she had a book out - but quickly realized, mine isn't ready because our story isn't finished. I'm still in the thick of it.
Cindi is a real role model for me, not just as a mother to children with Fragile X but as a speaker and educator, and now an author! I was green with envy when I saw that she had a book out - but quickly realized, mine isn't ready because our story isn't finished. I'm still in the thick of it.
Check out Cindi's story, available on Amazon! I plan to bring mine along to the conference in Anaheim this summer, so I can ask her to sign it.
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