I felt so bad when I realized I'd forgotten the Clonidine, the one thing that really calms him. No wonder he was such a mess. Within 20 minutes of having it, he relaxed and stopped wailing, finally, and went to bed. Just about an hour later than usual for him.
Saturday, October 30, 2010
I don't know if we're going to make it.
Zack screamed and cried for a bottle for a little over an hour and a half last night. He wailed, he was hysterical. Mark and I took turns dealing with him and he did drink from a regular cup for a little bit, but he was out of his mind with anxiety. Around 8:30, a full hour and a half after nighttime-medicine time, it dawns on me that I forgot to give him his Clonidine. I just .... forgot somehow, at 7 when I gave the boys their other medications. Zack had wanted lots of applesauce and I figured he was thirsty and applesauce is kind of watery. And I was beginning to worry about the fact that he hadn't peed since the middle of the afternoon. Only about 3 hours, but I was starting to think about that.
Earlier in the day we'd been to the Harvest Party at Aliza's school and the boys didn't do well there. Like an idiot, I marched them right into the classroom full of 2nd graders, and I tried to get them to sit in a corner with me, but within a few seconds Zack pinched someone, and I told him "no,", and he screamed, and it was one of those screams where everyone stopped what they were doing and looked over at us.....and later Aliza told me that embarrassed her, when Zack screamed like that in her classroom and I felt bad about that......and we were all so exhausted when we got home. There was a lot going on all day, it was chaotic, and apparently I lost my mind.
But this morning he was up before 5:30, asking for a bottle, and I woke up with a jackhammer pounding in my head. Way too little sleep for him last night. I anticipate a rough day. There's no school today, no therapy, he's with us all day with no breaks. I'm not sure we're going to make it without bottles today.
Subscribe to:
Post Comments (Atom)
Labels
#youmightbeanautismparentif
2012 in review
9/11 memories
ABA therapy
Acceptance
acronyms
advocacy
affection
aggression
AJ
Aliza
Aliza the playwright
All I really need to know...
Alphabitty Moments
American Girl
Ann Coulter
antibullying
anxiety
anxiety in parents of children with special needs
apple orchard
apps for autism
AppSmitten
Arbaclofen
Arbitrary Thoughts
ARC
autism
autism brushing
autism portrayed in TV shows
Autism Shines
awareness
backyard
band
baseball
bath toys
beds
behavior problems
being tall
Birthday Boys
biting
blog change
blog hop
blogging
books
bottles
brushing
bubbles
Burnsville Fire Muster
bus
Cabin Fever in Minnesota
candy
Carly Fleischmann
Carly's Voice
cats
cats and dogs
chewys
Chicago
childcare for special needs children
childhood
Children's Museum
chocolate
Christmas
Church
circumin
clinical trials
Clonidine
CNN Hero of 2011
coffee
communication
comparisons
computer
Conference
cost of special education
Courage Center
Curcumin
daddy
dance
dance competition
dance moms
Dental surgery
dentist
developmental milestones
diagnosis
diapers
Diego
Disability Day
dogs
Dolphin Tale
Doomsday Preparation
Dora
Doritos
drug trials
DVD player
early intervention
earrings
Easter
ECSE Parent Retreat
electronic gadgets
electronics
Everything I need to know...
Evil Overlord
fall
falling asleep at school
families
family
fashion
fear
Featured
Feel Good Friday
field trip
fireworks
first day of school
Flash Gordon
Food Chronicles
food issues in Fragile X and autistic children
forms
forts
Fragile Face of God
Fragile X
Fragile X advocate
Fragile X and autism
Fragile X Awareness Day
Fragile X carriers
Fragile X in the news
Fragile X presentation
Fragile X statistics
Fragile X Writers
friends
fundraiser for Fragile X
funniest
Funny
Gabrielle Giffords
Galveston
games
getting carsick
Girls' Night Out
Giving Spirit
glasses
global warming
going home
Good Morning
Great Quotes
guest blogs
guest post
haircuts
Halloween
hearing test
Heaven is for Real
hippotherapy
holidays
Holland
Holly
home life
homework
hotel
hugging
human behavior
hyperactivity
IEP Meeting
IEPs
in the news
inclusion
inspiration
integration
iPad
iPad apps
iPad apps for autism
IQ testing
Jack Jablonski
January First
Joke
journal entry
kids with Fragile X and animals
Kindergarten
Kindle
kisses
language study
learning to talk
leaves
lemonade stand
Lily
Little Einsteins
losing teeth
Mad Gab
makeup
mall
Mall of America
marcia braden
McDonalds
media sensationalization
medications
Melatonin
Miami
MIND Institute
Minnesota Bloggers Conference
minocycline
Miracle League
monkeys
mosquito bites
Mother's Day
movies
MVMOM Used Clothing and Equipment Sale
nail trimming
names
naughtiness
neighbors
nicknames
nightmares
normal
off topic
one thing leads to another
online dating
Operation Beautiful
oral sensory
orphan drug act
other bloggers
Our Wedding
outside
overstimulation
panic attacks
parade
parental stress
Parenthood
park
Partners in Policymaking
penicillin
people with disabilities
pets
pharmacy fun
photography
Photoshop
picnic
Pictures
pinching
pink shirt
Pinterest
playing outside
playing with toys
poem
politics
poop
potty training
Presents
protecting autistic children
rash
reading to kids
research
Retreat
riding a bike
Robin Williams
Roger Ebert
routine
RSS feed
RUSH University
San Diego
Sandy Hook Elementary
Santa
schedules
school
school bus
school notes
school pictures
screaming
self image
self-checkouts
sensory
Seroquel
siblings with developmental delays
sick kids
sippy cups
sleep
smile
snow pictures
Snowstorm
social situations
speaking of the unspeakable
special education
special education evaluation
special needs kids
special needs parents
Special Needs Ryan Gosling
Special Olympics
spelling
spoon feeding
spring break
staying positive
stimming
Strep
STX209
Stylish Blog Award
suicide
summer
Sunday School
Sundays
sunshine
survival mode
swimming
talking
talking to kindergarteners
Target
teacher's aides
Teeth brushing
Tegretol
Temple Grandin
Ten Commandments
textbook case of Fragile X
thankful
thanksgiving
that window/mirror thing
The Autism Store
The R Word
the rapid passage of time
The Right Things to say to parents of special needs children
The Santa Experience
the Shedd Aquarium
The Twin Thing
The Wiggles
therapeutic horseback riding
therapy
This is Autism
topless
trampoline
traveling with special needs children
TV
twins with special needs
Twitter
typical Fragile X characteristics
typical kids
typing
vacation
Vacation Bible School
video games
videos
volunteering
Waisman Center
water play
way-back-Wednesday
What I've Learned
What's your song?
when a special needs parent dies
Wiggles
Wii games
Winner Winner Chicken Dinner
winter
wonder
Wonder Pets
Wordful Wednesday
Wordless Wednesday
Words of Wisdom
World Autism Awareness Day
YMCA
You Tube
Zack
Zoloft
zoo animals
Fragile X Blogs
-
-
in between smile lines8 months ago
-
THANKFUL AT EXIT 3671 year ago
-
3 months. 11 years wasn't enough.5 years ago
-
Just Goals. Not Resolutions.7 years ago
-
Ramble On8 years ago
-
I scared.8 years ago
-
-
A Blake Funny9 years ago
-
North Carolina Snow Day10 years ago
-
Make Room for Our Awesome Little Weirdo10 years ago
-
Sad face... ; - (10 years ago
-
-
Kindness, in bulk10 years ago
-
Taking time to play in the snow10 years ago
-
No holding back10 years ago
-
Managing the day11 years ago
-
Balance bike11 years ago
-
Fragile X Awareness Day 201411 years ago
-
-
Thank You11 years ago
-
And the mama claws come out12 years ago
-
A review of almost two years12 years ago
-
Tell Me a Story…12 years ago
-
Stop? Never!12 years ago
-
The Things I've Learned12 years ago
-
valentines fun and recipes13 years ago
-
teammates13 years ago
-
My Turn To Release13 years ago
-
The Connector to the Rescue!13 years ago
-
-
-
-
New Fragile X drug?15 years ago
-
-
Special Needs Blogs
-
Day Program9 months ago
-
-
-
-
-
-
An AAC WWYD, for the professionals8 years ago
-
-
Risk Factors You Control8 years ago
-
Spectacular Six9 years ago
-
-
Fall Fail10 years ago
-
-
How Television Benefits Your Children14 years ago
-
-
-
3 comments:
I have been in your situation a number of times now and trust me you can get thru it..I would be firm and tell them both no bottle BUT you can have a drink in your cup and if your a good boy and go the whole day with no bottles then tomorrow we will take you to do something..give him something --whatever floats his boat..maybe a coloring book and some colored pencils..play doh.. it is said it take 21 days to make a habit and 21 days to break a habit.. when my boys scream(beyound belief)I take them to there room close the door and let them scream ,I go back every 5 minutes and tell them if the keep it up they will stay in there longer but I will not put up with there screaming..it takes time and you have to listen to ALOT of screaming..but either way the screaming is going to happen but at the end of it you won;t have them on bottles and they will learn mummy means bussiness..My biggest screamer has learnt to moderfy his behaviour much better once he realized i wasn;t giving in.
Buy some ear plugs if it helps
Cheers Sonia
So sorry you're having to go through this. I know it's tough. Sticking with it IS going to be the key. I know it kills us as parents. I've learned through our journey that to endure the 'consequences' now (ie. screaming) will pay off because I know it's for his best in the future. You know your kids the best. They are resilient little things though. Love being able to be kept updated on this. Be sure you get lots of hugs!
Hang in there, honey. I'm praying for you today and sending you all the strength and magic I can muster.
Post a Comment