Zack screamed and cried for a bottle for a little over an hour and a half last night. He wailed, he was hysterical. Mark and I took turns dealing with him and he did drink from a regular cup for a little bit, but he was out of his mind with anxiety. Around 8:30, a full hour and a half after nighttime-medicine time, it dawns on me that I forgot to give him his Clonidine. I just .... forgot somehow, at 7 when I gave the boys their other medications. Zack had wanted lots of applesauce and I figured he was thirsty and applesauce is kind of watery. And I was beginning to worry about the fact that he hadn't peed since the middle of the afternoon. Only about 3 hours, but I was starting to think about that.
But this morning he was up before 5:30, asking for a bottle, and I woke up with a jackhammer pounding in my head. Way too little sleep for him last night. I anticipate a rough day. There's no school today, no therapy, he's with us all day with no breaks. I'm not sure we're going to make it without bottles today.
Fragile X – 6th Form and Bus Passes
1 week ago