Friday, April 15, 2011
Feel Good Friday - Better Late than Never
Finding stuff to feel good about, more or less....
1. This past week we recognized the anniversary of our D-Day. The day we got the Fragile X diagnosis. It was Tuesday. We talked about it a little, and I did not cry.
2. I saved my crying for Wednesday, when the lead psychiatrist lady told me it'll be nice when my boys are able to say "I want to call mom" to the staff at their group home where they'll live when they are grown. What's so ironic to me is the fact that of all the phrases she could have used as an example, she chose that one. My guys will want to call their mom from the group home. Well isn't that nice. Hey, I'm seeing the humor in it now. (On a more serious note, I am thinking about whether or not to say anything to her about how hurtful and inappropriate and just plain wrong it was for her to say that. I've gotten so much awesome support and love from you about this and I am so grateful for everyone who emailed, called, commented, or even just read this and thought or prayed for us. It's like she deflated my balloon, and you guys came right over and pumped it back up!)
3. This weekend Mark and I are headed to the Dakota County Parent Retreat. It's a weekend gathering for parents of children with special needs, ages birth to 5, who live in Dakota County and are receiving services from the school districts' ECSE (you've heard of ESFE - Early Childhood Family Education - did you know there's also an ECSE - Early Childhood Special Education? I didn't know either, a few years ago.). Our kids have graduated from the ECSE program but we still go to the retreat, because I joined the committee to plan it. It's a terrific day and a half of learning, commiserating, relaxing, bonding, and sharing. We will be facilitating a parent networking group in the morning and then sitting on a panel of special needs parents in the afternoon. Then we get a fancy dinner (read: without children) and a stay over night in a nice hotel! I think we are going to go see a movie after dinner! I am perusing Fandango to see what's playing.
4. Tuesday night was our Mothers of Multiples meeting and it was a spa night -- a night for total relaxation and conversation. It was so much fun, I do love my MOMs! I talked to a few MOMs about our Special Kids, Special Needs subgroup and we have decided to have our own dinner, to meet and share stories and keep each other afloat.
5. No one has thrown up in this house in a whole week now. Well, almost a week. Almost counts.
Feel Good Friday is currently being hosted by Lia Sophia Girl, so if you feel inspired, write down some things you have to feel good about and get on over there to link up.
And to The Girl Next Door Grows Up, the originator of Feel Good Friday, if you are reading this, I miss you and I'm eagerly anticipating your return!
Subscribe to:
Post Comments (Atom)
Labels
#youmightbeanautismparentif
2012 in review
9/11 memories
ABA therapy
Acceptance
acronyms
advocacy
affection
aggression
AJ
Aliza
Aliza the playwright
All I really need to know...
Alphabitty Moments
American Girl
Ann Coulter
antibullying
anxiety
anxiety in parents of children with special needs
apple orchard
apps for autism
AppSmitten
Arbaclofen
Arbitrary Thoughts
ARC
autism
autism brushing
autism portrayed in TV shows
Autism Shines
awareness
backyard
band
baseball
bath toys
beds
behavior problems
being tall
Birthday Boys
biting
blog change
blog hop
blogging
books
bottles
brushing
bubbles
Burnsville Fire Muster
bus
Cabin Fever in Minnesota
candy
Carly Fleischmann
Carly's Voice
cats
cats and dogs
chewys
Chicago
childcare for special needs children
childhood
Children's Museum
chocolate
Christmas
Church
circumin
clinical trials
Clonidine
CNN Hero of 2011
coffee
communication
comparisons
computer
Conference
cost of special education
Courage Center
Curcumin
daddy
dance
dance competition
dance moms
Dental surgery
dentist
developmental milestones
diagnosis
diapers
Diego
Disability Day
dogs
Dolphin Tale
Doomsday Preparation
Dora
Doritos
drug trials
DVD player
early intervention
earrings
Easter
ECSE Parent Retreat
electronic gadgets
electronics
Everything I need to know...
Evil Overlord
fall
falling asleep at school
families
family
fashion
fear
Featured
Feel Good Friday
field trip
fireworks
first day of school
Flash Gordon
Food Chronicles
food issues in Fragile X and autistic children
forms
forts
Fragile Face of God
Fragile X
Fragile X advocate
Fragile X and autism
Fragile X Awareness Day
Fragile X carriers
Fragile X in the news
Fragile X presentation
Fragile X statistics
Fragile X Writers
friends
fundraiser for Fragile X
funniest
Funny
Gabrielle Giffords
Galveston
games
getting carsick
Girls' Night Out
Giving Spirit
glasses
global warming
going home
Good Morning
Great Quotes
guest blogs
guest post
haircuts
Halloween
hearing test
Heaven is for Real
hippotherapy
holidays
Holland
Holly
home life
homework
hotel
hugging
human behavior
hyperactivity
IEP Meeting
IEPs
in the news
inclusion
inspiration
integration
iPad
iPad apps
iPad apps for autism
IQ testing
Jack Jablonski
January First
Joke
journal entry
kids with Fragile X and animals
Kindergarten
Kindle
kisses
language study
learning to talk
leaves
lemonade stand
Lily
Little Einsteins
losing teeth
Mad Gab
makeup
mall
Mall of America
marcia braden
McDonalds
media sensationalization
medications
Melatonin
Miami
MIND Institute
Minnesota Bloggers Conference
minocycline
Miracle League
monkeys
mosquito bites
Mother's Day
movies
MVMOM Used Clothing and Equipment Sale
nail trimming
names
naughtiness
neighbors
nicknames
nightmares
normal
off topic
one thing leads to another
online dating
Operation Beautiful
oral sensory
orphan drug act
other bloggers
Our Wedding
outside
overstimulation
panic attacks
parade
parental stress
Parenthood
park
Partners in Policymaking
penicillin
people with disabilities
pets
pharmacy fun
photography
Photoshop
picnic
Pictures
pinching
pink shirt
Pinterest
playing outside
playing with toys
poem
politics
poop
potty training
Presents
protecting autistic children
rash
reading to kids
research
Retreat
riding a bike
Robin Williams
Roger Ebert
routine
RSS feed
RUSH University
San Diego
Sandy Hook Elementary
Santa
schedules
school
school bus
school notes
school pictures
screaming
self image
self-checkouts
sensory
Seroquel
siblings with developmental delays
sick kids
sippy cups
sleep
smile
snow pictures
Snowstorm
social situations
speaking of the unspeakable
special education
special education evaluation
special needs kids
special needs parents
Special Needs Ryan Gosling
Special Olympics
spelling
spoon feeding
spring break
staying positive
stimming
Strep
STX209
Stylish Blog Award
suicide
summer
Sunday School
Sundays
sunshine
survival mode
swimming
talking
talking to kindergarteners
Target
teacher's aides
Teeth brushing
Tegretol
Temple Grandin
Ten Commandments
textbook case of Fragile X
thankful
thanksgiving
that window/mirror thing
The Autism Store
The R Word
the rapid passage of time
The Right Things to say to parents of special needs children
The Santa Experience
the Shedd Aquarium
The Twin Thing
The Wiggles
therapeutic horseback riding
therapy
This is Autism
topless
trampoline
traveling with special needs children
TV
twins with special needs
Twitter
typical Fragile X characteristics
typical kids
typing
vacation
Vacation Bible School
video games
videos
volunteering
Waisman Center
water play
way-back-Wednesday
What I've Learned
What's your song?
when a special needs parent dies
Wiggles
Wii games
Winner Winner Chicken Dinner
winter
wonder
Wonder Pets
Wordful Wednesday
Wordless Wednesday
Words of Wisdom
World Autism Awareness Day
YMCA
You Tube
Zack
Zoloft
zoo animals
Fragile X Blogs
-
-
-
THANKFUL AT EXIT 3673 weeks ago
-
3 months. 11 years wasn't enough.4 years ago
-
Just Goals. Not Resolutions.6 years ago
-
Ramble On6 years ago
-
I scared.7 years ago
-
-
A Blake Funny8 years ago
-
North Carolina Snow Day8 years ago
-
Make Room for Our Awesome Little Weirdo9 years ago
-
Sad face... ; - (9 years ago
-
-
Kindness, in bulk9 years ago
-
Taking time to play in the snow9 years ago
-
No holding back9 years ago
-
Managing the day9 years ago
-
Balance bike10 years ago
-
Fragile X Awareness Day 201410 years ago
-
-
Thank You10 years ago
-
And the mama claws come out11 years ago
-
A review of almost two years11 years ago
-
Tell Me a Story…11 years ago
-
Stop? Never!11 years ago
-
The Things I've Learned11 years ago
-
valentines fun and recipes11 years ago
-
teammates11 years ago
-
My Turn To Release12 years ago
-
The Connector to the Rescue!12 years ago
-
-
-
-
New Fragile X drug?14 years ago
-
-
Special Needs Blogs
-
-
-
-
-
May6 years ago
-
-
An AAC WWYD, for the professionals6 years ago
-
-
Risk Factors You Control7 years ago
-
Spectacular Six8 years ago
-
-
Fall Fail9 years ago
-
-
How Television Benefits Your Children13 years ago
-
-
-
No comments:
Post a Comment