Tuesday, September 13, 2011

Speed Bumps

Apparently I am not meant to do anything but stay home with children.  All three should be suffering through full days of school now, but the first couple of weeks have been full of speed bumps.

All three went to school on the first day and evidently dipped their hands and heads right into the giant vat of germs and bacteria that I think every school must have.  Aliza was sick a day and a half last week.  This week, Zack has stayed home Monday and Tuesday.

AJ has been doing splendidly. He loves being there and they are thrilled will how much more he is talking.

This is also the first time the boys have had a meal at school, and neither one is really eating lunch.   I am trying to decide at what point I intervene. At what point do I say, "Let them eat in the autism room - so they will at least eat something!?"   By the end of the week they were munching on a little cereal in the cafeteria, but still not touching their sandwiches.

That's another thing -- peanut butter and jelly sandwiches are about all I can make them for lunch. There's nothing else they eat that I could easily pack in a bag and let sit all morning.    I guess it's going to be PBJs for them every single day.

Zack has been sad. On Friday, the notes from school say "Today's Zack's preferred activity was to sit in a chair in the choice time area and look out the window. It was SO unusual, he sat almost completely still. A few separate occasions he started to cry quietly and looked very homesick. He required lots of redirection to distract him from feeling the blues today."

My poor boy. He's having a very tough time adjusting to the long days.

We have a ton more language than we did a year ago, but they're not exactly conversational.  It would be nice if, when they are sick, they could give me a couple of specifics.

In happier news, this past weekend we took the boys to the Burnsville Firemuster parade - see here for details from last year's parade adventure.  They are way, way too big for the stroller, but they feel secure sitting in it, so I don't dare get rid of it.

Almost smacked Grandma with that flag.

They don't look too thrilled to be there, but they didn't struggle to get away and repeatedly say "go home?" so I consider it a huge step forward!

This year they actually sat and watched the whole thing.  Well, they watched most of it.  One other great benefit of this stroller is the way you can hide from the world in it.

Aliza got to scratch off something on her bucket list ("Things I Want to Do Before Middle School").  She walked in the parade with her dance team.


Hoping Zack's nose clears up enough for him to go to school tomorrow..... today he's going to be watching a lot of Little Einsteins and doing puzzles and fun folders.

No comments:

Labels

#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs