I'm on an email list that consists mostly of parents of children with Fragile X, and I can't stress enough how informative it's been. It's been heart-wrenching at times as well, since we all share our bad times right along with the good.
Anyway, this past Sunday, one of the emails contained a link to a blog that lists school in the US, alphabetically by state, that have been cited for using abusive restraint practices. Here it is:
http://familiesagainstrestraintandseclusion.blogspot.com/search/label/Is%20Your%20School%20on%20our%20%22List%3F%22
Notice how insanely long the Minnesota list is. Notice too that Sky Oaks, the school Zack & AJ might attend, is on the list. I tried not to panic and sent the email immediately to the boys' teacher, Sarah, who is such a great and caring advocate. I love her, whatever they are paying her, it's not enough. She responded almost immediately on Sunday night (did I mention how devoted and tireless she is) and said that it seemed to her they had listed all the schools in MN that have a seclusion room, whether it is used or not. They didn't cite specific abuse allegations, just listed that these schools do in fact have a seclusion room. Sarah said that that while it's true that Sky Oaks has a seclusion room, they don't use it -- they know that seclusion and "time outs" don't work with our kids with autism.
Which did make me feel better, although clearly I've got to investigate this further. Because I know my boys can get aggressive, and I know they don't mean to hurt anyone but Zack will bite someone who makes him nervous or upset. And almost everyone he doesn't know makes him nervous and upset! I have seen how our ABA therapists deal with the boys' attempts to bite; they just turn away, basically they seclude themselves as much as they can. Because any response at all to that kind of behavior is the incorrect one. You just have to ignore it as much as possible. I'd hate for Zack to scream and try to bite someone at kindergarten next year and end up restrained or in a seclusion room, alone. I'll have to ask Sarah again when I might find out exactly which school the boys will attend so I can start asking questions about their restraint and seclusion policies.
Wednesday, February 03, 2010
Subscribe to:
Post Comments (Atom)
Labels
#youmightbeanautismparentif
2012 in review
9/11 memories
ABA therapy
Acceptance
acronyms
advocacy
affection
aggression
AJ
Aliza
Aliza the playwright
All I really need to know...
Alphabitty Moments
American Girl
Ann Coulter
antibullying
anxiety
anxiety in parents of children with special needs
apple orchard
apps for autism
AppSmitten
Arbaclofen
Arbitrary Thoughts
ARC
autism
autism brushing
autism portrayed in TV shows
Autism Shines
awareness
backyard
band
baseball
bath toys
beds
behavior problems
being tall
Birthday Boys
biting
blog change
blog hop
blogging
books
bottles
brushing
bubbles
Burnsville Fire Muster
bus
Cabin Fever in Minnesota
candy
Carly Fleischmann
Carly's Voice
cats
cats and dogs
chewys
Chicago
childcare for special needs children
childhood
Children's Museum
chocolate
Christmas
Church
circumin
clinical trials
Clonidine
CNN Hero of 2011
coffee
communication
comparisons
computer
Conference
cost of special education
Courage Center
Curcumin
daddy
dance
dance competition
dance moms
Dental surgery
dentist
developmental milestones
diagnosis
diapers
Diego
Disability Day
dogs
Dolphin Tale
Doomsday Preparation
Dora
Doritos
drug trials
DVD player
early intervention
earrings
Easter
ECSE Parent Retreat
electronic gadgets
electronics
Everything I need to know...
Evil Overlord
fall
falling asleep at school
families
family
fashion
fear
Featured
Feel Good Friday
field trip
fireworks
first day of school
Flash Gordon
Food Chronicles
food issues in Fragile X and autistic children
forms
forts
Fragile Face of God
Fragile X
Fragile X advocate
Fragile X and autism
Fragile X Awareness Day
Fragile X carriers
Fragile X in the news
Fragile X presentation
Fragile X statistics
Fragile X Writers
friends
fundraiser for Fragile X
funniest
Funny
Gabrielle Giffords
Galveston
games
getting carsick
Girls' Night Out
Giving Spirit
glasses
global warming
going home
Good Morning
Great Quotes
guest blogs
guest post
haircuts
Halloween
hearing test
Heaven is for Real
hippotherapy
holidays
Holland
Holly
home life
homework
hotel
hugging
human behavior
hyperactivity
IEP Meeting
IEPs
in the news
inclusion
inspiration
integration
iPad
iPad apps
iPad apps for autism
IQ testing
Jack Jablonski
January First
Joke
journal entry
kids with Fragile X and animals
Kindergarten
Kindle
kisses
language study
learning to talk
leaves
lemonade stand
Lily
Little Einsteins
losing teeth
Mad Gab
makeup
mall
Mall of America
marcia braden
McDonalds
media sensationalization
medications
Melatonin
Miami
MIND Institute
Minnesota Bloggers Conference
minocycline
Miracle League
monkeys
mosquito bites
Mother's Day
movies
MVMOM Used Clothing and Equipment Sale
nail trimming
names
naughtiness
neighbors
nicknames
nightmares
normal
off topic
one thing leads to another
online dating
Operation Beautiful
oral sensory
orphan drug act
other bloggers
Our Wedding
outside
overstimulation
panic attacks
parade
parental stress
Parenthood
park
Partners in Policymaking
penicillin
people with disabilities
pets
pharmacy fun
photography
Photoshop
picnic
Pictures
pinching
pink shirt
Pinterest
playing outside
playing with toys
poem
politics
poop
potty training
Presents
protecting autistic children
rash
reading to kids
research
Retreat
riding a bike
Robin Williams
Roger Ebert
routine
RSS feed
RUSH University
San Diego
Sandy Hook Elementary
Santa
schedules
school
school bus
school notes
school pictures
screaming
self image
self-checkouts
sensory
Seroquel
siblings with developmental delays
sick kids
sippy cups
sleep
smile
snow pictures
Snowstorm
social situations
speaking of the unspeakable
special education
special education evaluation
special needs kids
special needs parents
Special Needs Ryan Gosling
Special Olympics
spelling
spoon feeding
spring break
staying positive
stimming
Strep
STX209
Stylish Blog Award
suicide
summer
Sunday School
Sundays
sunshine
survival mode
swimming
talking
talking to kindergarteners
Target
teacher's aides
Teeth brushing
Tegretol
Temple Grandin
Ten Commandments
textbook case of Fragile X
thankful
thanksgiving
that window/mirror thing
The Autism Store
The R Word
the rapid passage of time
The Right Things to say to parents of special needs children
The Santa Experience
the Shedd Aquarium
The Twin Thing
The Wiggles
therapeutic horseback riding
therapy
This is Autism
topless
trampoline
traveling with special needs children
TV
twins with special needs
Twitter
typical Fragile X characteristics
typical kids
typing
vacation
Vacation Bible School
video games
videos
volunteering
Waisman Center
water play
way-back-Wednesday
What I've Learned
What's your song?
when a special needs parent dies
Wiggles
Wii games
Winner Winner Chicken Dinner
winter
wonder
Wonder Pets
Wordful Wednesday
Wordless Wednesday
Words of Wisdom
World Autism Awareness Day
YMCA
You Tube
Zack
Zoloft
zoo animals
Fragile X Blogs
-
-
The Gift of Humanity1 week ago
-
hope springs back1 month ago
-
64. Our next chapter. Independence.1 month ago
-
Goals, Resolutions and Choices.5 years ago
-
-
-
I scared.6 years ago
-
-
-
Drew's trophies7 years ago
-
North Carolina Snow Day8 years ago
-
Make Room for Our Awesome Little Weirdo8 years ago
-
-
-
compromise or accomodate9 years ago
-
Taking time to play in the snow9 years ago
-
Managing the day9 years ago
-
Balance bike9 years ago
-
Fragile X Awareness Day 20149 years ago
-
-
Thank You10 years ago
-
And the mama claws come out10 years ago
-
A review of almost two years10 years ago
-
Stop? Never!10 years ago
-
The Things I've Learned11 years ago
-
valentines fun and recipes11 years ago
-
teammates11 years ago
-
My Turn To Release11 years ago
-
The Connector to the Rescue!11 years ago
-
-
-
-
New Fragile X drug?13 years ago
-
-
Special Needs Blogs
-
Thirteen - Part 5 - Emergency Again6 months ago
-
-
My New Blog: Sounding Out Dyslexia3 years ago
-
-
-
-
-
Uptight5 years ago
-
-
Risk Factors You Control6 years ago
-
-
Fall Fail8 years ago
-
-
How Television Benefits Your Children12 years ago
-
-
-
2 comments:
I ask all parents to advocate for regulation regardless if the school states they don't use seclusion or restraint. If it exists, it can be used. What if that teacher or an understanding administrator leaves the school and someone with less knowledge or understanding takes their place? My son had this happen to him in kindergarten, I would've told anyone they were crazy if they suggested it could. But I work tirelessly to try and make sure no other families have to experience the trauma of misuse seclusion and restraint.
The mark up of the fed bill is tomorrow. Please contact your legislators: http://nomoseclusion.blogspot.com/2009/12/how-to-contact-congress.html http://nomoseclusion.blogspot.com/2010/02/advisory-house-education-committee-to.html
Ange (Missouri)
URGENT - Your help is needed on the federal bill!
Dear Advocates,
Trouble looms with the minority members on the Education and Labor Committee regarding the Seclusion and Restraints Bill that is scheduled for mark up tomorrow morning. Please call the Republican Committee members below tomorrow morning Thursday 02/04/2010 and ask them to please support the Restraint and Seclusion Bill (H.R. 4247).
Please pass this information on to other advocates, friends and family members and ask them to please help make calls tomorrow morning.
John Kline (Minnesota)
Washington, D.C. Office
1210 Longworth HOB
Washington, DC 20515
Phone: (202) 225-2271
Fax: (202) 225-2595
Michael Castle (Delaware)
Washington Office 1233 Longworth HOB
Washington, DC 20515
p: 202.225.4165
f: 202.225.2291
Brett Guthrie (Kentucky)
Washington, DC Office
510 Cannon H.O.B.
Washington, DC 20515
Phone: (202) 225-3501
Fax: (202) 226-2019
Bill Cassidy (Louisiana)
Washington DC Office
506 Cannon HOB
Washington, D.C. 20515
Phone: (202) 225-3901
Fax: (202) 225-7313
Vernon Ehlers (Michigan)
Washington Office
2182 Rayburn House Office Building
Washington, DC 20515
voice (202) 225-3831
fax (202) 225-5144
Judy Biggert (Illinois)
Washington, DC Office
1034 Longworth House Office Building
Washington, DC 20515
Phone: 202-225-3515
Fax: 202-225-9420
Thank you!
Regards,
Phyllis
Families Against Restraint and Seclusion
Your children are counting on you to keep them safe.
Post a Comment