Wednesday, February 03, 2010

Restraint and Seclusion

I'm on an email list that consists mostly of parents of children with Fragile X, and I can't stress enough how informative it's been.  It's been heart-wrenching at times as well, since we all share our bad times right along with the good.

Anyway, this past Sunday, one of the emails contained a link to a blog that lists school in the US, alphabetically by state, that have been cited for using abusive restraint practices.  Here it is:

http://familiesagainstrestraintandseclusion.blogspot.com/search/label/Is%20Your%20School%20on%20our%20%22List%3F%22

Notice how insanely long the Minnesota list is.  Notice too that Sky Oaks, the school Zack & AJ might attend, is on the list.  I tried not to panic and sent the email immediately to the boys' teacher, Sarah, who is such a great and caring advocate.  I love her, whatever they are paying her, it's not enough.  She responded almost immediately on Sunday night (did I mention how devoted and tireless she is) and said that it seemed to her they had listed all the schools in MN that have a seclusion room, whether it is used or not.  They didn't cite specific abuse allegations, just listed that these schools do in fact have a seclusion room.  Sarah said that that while it's true that Sky Oaks has a seclusion room, they don't use it -- they know that seclusion and "time outs" don't work with our kids with autism.

Which did make me feel better, although clearly I've got to investigate this further.  Because I know my boys can get aggressive, and I know they don't mean to hurt anyone but Zack will bite someone who makes him nervous or upset.  And almost everyone he doesn't know makes him nervous and upset!  I have seen how our ABA therapists deal with the boys' attempts to bite; they just turn away, basically they seclude themselves as much as they can.  Because any response at all to that kind of behavior is the incorrect one.  You just have to ignore it as much as possible.  I'd hate for Zack to scream and try to bite someone at kindergarten next year and end up restrained or in a seclusion room, alone.  I'll have to ask Sarah again when I might find out exactly which school the boys will attend so I can start asking questions about their restraint and seclusion policies.

2 comments:

Ange said...

I ask all parents to advocate for regulation regardless if the school states they don't use seclusion or restraint. If it exists, it can be used. What if that teacher or an understanding administrator leaves the school and someone with less knowledge or understanding takes their place? My son had this happen to him in kindergarten, I would've told anyone they were crazy if they suggested it could. But I work tirelessly to try and make sure no other families have to experience the trauma of misuse seclusion and restraint.

The mark up of the fed bill is tomorrow. Please contact your legislators: http://nomoseclusion.blogspot.com/2009/12/how-to-contact-congress.html http://nomoseclusion.blogspot.com/2010/02/advisory-house-education-committee-to.html

Ange (Missouri)

Floridamom said...

URGENT - Your help is needed on the federal bill!

Dear Advocates,

Trouble looms with the minority members on the Education and Labor Committee regarding the Seclusion and Restraints Bill that is scheduled for mark up tomorrow morning. Please call the Republican Committee members below tomorrow morning Thursday 02/04/2010 and ask them to please support the Restraint and Seclusion Bill (H.R. 4247).

Please pass this information on to other advocates, friends and family members and ask them to please help make calls tomorrow morning.

John Kline (Minnesota)
Washington, D.C. Office
1210 Longworth HOB
Washington, DC 20515
Phone: (202) 225-2271
Fax: (202) 225-2595

Michael Castle (Delaware)
Washington Office 1233 Longworth HOB
Washington, DC 20515
p: 202.225.4165
f: 202.225.2291

Brett Guthrie (Kentucky)
Washington, DC Office
510 Cannon H.O.B.
Washington, DC 20515
Phone: (202) 225-3501
Fax: (202) 226-2019

Bill Cassidy (Louisiana)
Washington DC Office
506 Cannon HOB
Washington, D.C. 20515
Phone: (202) 225-3901
Fax: (202) 225-7313

Vernon Ehlers (Michigan)
Washington Office
2182 Rayburn House Office Building
Washington, DC 20515
voice (202) 225-3831
fax (202) 225-5144

Judy Biggert (Illinois)
Washington, DC Office
1034 Longworth House Office Building
Washington, DC 20515
Phone: 202-225-3515
Fax: 202-225-9420

Thank you!

Regards,

Phyllis
Families Against Restraint and Seclusion

Your children are counting on you to keep them safe.

Labels

#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals

Fragile X Blogs