I admit I totally ripped off this whole idea from Love that Max. I give Ellen all the credit for coming up with this awesome year-in-review format.
In January Mark and I celebrated 10 years of marriage, we started the extension of the STX209 drug trial (so we finally knew we were giving the boys the actual medication, and didn't have to wonder anymore whether they were getting the placebo), I reflected on the Minnesota high school hockey player who suffered a debilitating injury and about how people with disabilities are viewed in general, I lost a newly found friend who also had twins with Fragile X, and I reviewed some of the boys' favorite iPad apps.
In February, first AJ and then Zack had a couple of rough days. Then the boys both showed verbal improvements - AJ talking in sentences, and Zack coming out of his box a bit more too. The boys went on a school field trip to the zoo; I groused about how I hate Valentine's Day; we tried out baseball; and finally, we played outside quite a bit because it was unseasonably warm.
March saw each of the kids getting sick; I pondered how I'd react to a cure to Fragile X and/or autism; We celebrated the beginning of spring by jumping on the trampoline; I debated whether to work on getting more help for the boys at school; I hired Ryan Gosling as my manny; we had some potty training debacles, and we had a wonderful time over spring break.
April saw the estimated numbers of kids with autism go up to 1 in 88; Zack got anxious at Courage Center and took it out on a kid in the waiting room; Aliza decided AJ was advanced enough to start taking some blame for some things; and Zack finally gave up the bottle FOR GOOD!
In May the boys continued on the bumpy road toward being more verbal; we rejoiced that the bottles had been banished and the potty wars went on; and the boys started the baseball season and it was a rough one.
June began with Zack starting his usual sensitivity to heat and humidity by screaming and biting his legs; AJ went on his first airplane trip when I took him to the MIND Institute in California; Mark, Aliza and I had a terrific time in Galveston, Texas; and Zack spent yet more quality time on the potty.
July brought on more heat and humidity, which Zack continues to suffer from the affects of; we wrapped up the baseball season and reflected; we recognized Fragile X Awareness Day with some time in the backyard wading pool; and I attended the International Fragile X Conference in Miami, and shared thoughts and photos.
In August we tried even more water therapy to help relieve Zack's skin sensitivity; we all had a great time at the Minnesota Fragile X Picnic; Aliza felt she was being forced to grow up too fast; we took some rides on some escalators; and we all went to a parade, and AJ even watched a little of it.
School started in September and AJ renewed his love of school buses; the whole family went to the Burnsville Fire Muster and both boys rode the Ferris Wheel; I wrote about why I love The Big Bang Theory; and Zack and AJ went back to sharing a bedroom.
In October I discussed how tall Aliza is and how we are helping her see that that is a good thing; we dealt with the fact that we exist in survival mode; a reporter came over and interviewed the boys and me; we spent a weekend in Iowa visiting with the Fragile X Heartland Alliance; and I talked to the boys' 2nd grade class about Fragile X and about special needs in general.
November saw the start of the Fragile X Writer's Series; I reviewed all the therapies we've done with the boys through the years, comparing and contrasting; the boys had a regular sibling interaction that I celebrated; we had a long appointment in Chicago; and Aliza expressed her thankfulness for her brothers.
In December I related to some of the kids at the school I work at; The Fragile X Writer's Series continued on; I documented the first real snowfall of the year; I compared the journey of raising special needs children to the Wizard of Oz story; and I posted a fun pictoral history of the kids visits with Santa through the years.
#youmightbeanautismparentif 2012 in review 9/11 memories ABA therapy Acceptance acronyms advocacy affection aggression AJ Aliza Aliza the playwright All I really need to know... Alphabitty Moments American Girl Ann Coulter antibullying anxiety anxiety in parents of children with special needs apple orchard apps for autism AppSmitten Arbaclofen Arbitrary Thoughts ARC autism autism brushing autism portrayed in TV shows Autism Shines awareness backyard band baseball bath toys beds behavior problems being tall Birthday Boys biting blog change blog hop blogging books bottles brushing bubbles Burnsville Fire Muster bus Cabin Fever in Minnesota candy Carly Fleischmann Carly's Voice cats cats and dogs chewys Chicago childcare for special needs children childhood Children's Museum chocolate Christmas Church circumin clinical trials Clonidine CNN Hero of 2011 coffee communication comparisons computer Conference cost of special education Courage Center Curcumin daddy dance dance competition dance moms Dental surgery dentist developmental milestones diagnosis diapers Diego Disability Day dogs Dolphin Tale Doomsday Preparation Dora Doritos drug trials DVD player early intervention earrings Easter ECSE Parent Retreat electronic gadgets electronics Everything I need to know... Evil Overlord fall falling asleep at school families family fashion fear Featured Feel Good Friday field trip fireworks first day of school Flash Gordon Food Chronicles food issues in Fragile X and autistic children forms forts Fragile Face of God Fragile X Fragile X advocate Fragile X and autism Fragile X Awareness Day Fragile X carriers Fragile X in the news Fragile X presentation Fragile X statistics Fragile X Writers friends fundraiser for Fragile X funniest Funny Gabrielle Giffords Galveston games getting carsick Girls' Night Out Giving Spirit glasses global warming going home Good Morning Great Quotes guest blogs guest post haircuts Halloween hearing test Heaven is for Real hippotherapy holidays Holland Holly home life homework hotel hugging human behavior hyperactivity IEP Meeting IEPs in the news inclusion inspiration integration iPad iPad apps iPad apps for autism IQ testing Jack Jablonski January First Joke journal entry kids with Fragile X and animals Kindergarten Kindle kisses language study learning to talk leaves lemonade stand Lily Little Einsteins losing teeth Mad Gab makeup mall Mall of America marcia braden McDonalds media sensationalization medications Melatonin Miami MIND Institute Minnesota Bloggers Conference minocycline Miracle League monkeys mosquito bites Mother's Day movies MVMOM Used Clothing and Equipment Sale nail trimming names naughtiness neighbors nicknames nightmares normal off topic one thing leads to another online dating Operation Beautiful oral sensory orphan drug act other bloggers Our Wedding outside overstimulation panic attacks parade parental stress Parenthood park Partners in Policymaking penicillin people with disabilities pets pharmacy fun photography Photoshop picnic Pictures pinching pink shirt Pinterest playing outside playing with toys poem politics poop potty training Presents protecting autistic children rash reading to kids research Retreat riding a bike Robin Williams Roger Ebert routine RSS feed RUSH University San Diego Sandy Hook Elementary Santa schedules school school bus school notes school pictures screaming self image self-checkouts sensory Seroquel siblings with developmental delays sick kids sippy cups sleep smile snow pictures Snowstorm social situations speaking of the unspeakable special education special education evaluation special needs kids special needs parents Special Needs Ryan Gosling Special Olympics spelling spoon feeding spring break staying positive stimming Strep STX209 Stylish Blog Award suicide summer Sunday School Sundays sunshine survival mode swimming talking talking to kindergarteners Target teacher's aides Teeth brushing Tegretol Temple Grandin Ten Commandments textbook case of Fragile X thankful thanksgiving that window/mirror thing The Autism Store The R Word the rapid passage of time The Right Things to say to parents of special needs children The Santa Experience the Shedd Aquarium The Twin Thing The Wiggles therapeutic horseback riding therapy This is Autism topless trampoline traveling with special needs children TV twins with special needs Twitter typical Fragile X characteristics typical kids typing vacation Vacation Bible School video games videos volunteering Waisman Center water play way-back-Wednesday What I've Learned What's your song? when a special needs parent dies Wiggles Wii games Winner Winner Chicken Dinner winter wonder Wonder Pets Wordful Wednesday Wordless Wednesday Words of Wisdom World Autism Awareness Day YMCA You Tube Zack Zoloft zoo animals